Multiple Myeloma

Posted by MZ @mehz4802, Jul 27, 2016

I was diagnosed after a bone marrow biopsy as having indolent myeloma 4 years ago. My oncologist says I now have multiple myeloma. I have not been receiving any kind of treatment, just blood tests every 4 mo. followed up by an office visit. The doctor prescribed some iron pills. A friend of mine also has multiple myeloma. She started taking calcium pills and her doctor is seeing some good results. I started taking calcium/vitamin D3 supplements. My primary care doctor diagnosed me with osteopenia (as well as high blood pressure and high cholesterol). My oncologist says that as long as he’s not worried, I should not be worried. But I keep feeling like there must be something that I can do to improve my situation.

@auntieoakley

@mountain009 , this page is has a lot of survivors. I will tell you, my husband was diagnosed with advanced disease in 2010, and still has a decent quality of life. Are you comfortable sharing some of your story here?

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https://youtu.be/jMy1H6m-Lk0 This 30 minute video interview gives key aspects of my 29+ myeloma survival.

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@jimbond48

https://youtu.be/jMy1H6m-Lk0 This 30 minute video interview gives key aspects of my 29+ myeloma survival.

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I absolutely loved the conversation about do we fight this thing or do the bucket list? My husband shouted out from behind me, “BOTH”.
I love your story. Thank you for sharing it. We had the honor of meeting Mike Katz at one of the myeloma seminars by the International myeloma foundation, he was a 26 or 27 years at that time. That really created a lot of hope for us at that time when we were not really given any here locally. Then we went to Mayo and found our amazing oncologist just 150 miles away. Now he is only about 70 miles. We are truly blessed.

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@auntieoakley

@mountain009 , this page is has a lot of survivors. I will tell you, my husband was diagnosed with advanced disease in 2010, and still has a decent quality of life. Are you comfortable sharing some of your story here?

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Chris ………… i dont have any of mine since i am new at MM but just anxiety………thanks. thanks for sharing your husbands story. will surely do as i progress. I hear there is no known cure for MM presently but prepare to live a good life.

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@mountain009

Chris ………… i dont have any of mine since i am new at MM but just anxiety………thanks. thanks for sharing your husbands story. will surely do as i progress. I hear there is no known cure for MM presently but prepare to live a good life.

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There are many tools in the box to treat MM, i think you can plan for some quality as well as quantity. The IMF has a whole section of great information for the newly diagnosed, I will post a link. Are you in an area with a large medical center? Have you looked up the IMF?
https://www.myeloma.org/multiple-myeloma/multiple-myeloma-diagnosis

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Member Spotlights feature interviews with fellow Mayo Clinic Connect members. It's an opportunity to learn more about members you’ve connected with and some you haven’t met yet.

I know many of you in the multiple myeloma discussions have exchanged posts with auntieoakley, so I thought you'd like to see today's featured Spotlight:
– I shall pass this way but once: Meet @auntieoakley https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/i-shall-pass-this-way-but-once-meet-auntieoakley/

Nominate a member to be featured. See more Member Spotlights here https://connect.mayoclinic.org/blog/about-connect/tab/newsfeed/

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