MRI results and Pain symptoms not matching. Dr says nothing he can do.
I had decompression and fusion at L3-L4-L5 one year ago. Throughout this year I have had lower back pain, leg pain, a drop foot, numb toes, heels and lower leg. Walking and bending are so painful. I wake throughout the night from pain and lately both my legs also ache so bad, it is impossible to get back to sleep.
The MRI and CT scan for my year post op appt says I have a broad based disc bulge and significant foraminal stenosis at L5-S1 compressing the exiting nerve roots and a disc bulge at L2-L3 with canal and foraminal stenosis and compression of the exiting nerve root.
My neurosurgeon said where I report pain does not match the MRI or CT scan and he can't do anything further for me. I feel like I am going absolutely crazy, being in this much pain every single day and night and being told this is it. I have had injections in the joints that have not helped. The surgeon said this is indicative that surgery would not help. I did 6 months of PT and now work out with a trainer and exercise 6 days a week. Does anyone have any advice? Do I just stop thinking there is a way to become pain-free and suck it up so to speak?
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Thanks, I am working on finding doctors who are not associated with the health system I am in. Luckily, I have insurance that lets me choose who I see. I had not thought of seeing a neurologist. I have an appt with my PCP this morning and I will ask for a referral. I have found out that some specialist regardless of insurance will only see you if it is a referral from another doctor.
https://www.spine-health.com/treatment/back-surgery/microdiscectomy-microdecompression-spine-surgery
I have gone to various doctors and neurology is the only one that has been helpful even though he doesn't really do anything (since I can't tolerate meds). I feel I have a partner in assessing when surgery will be needed. PT has been good too (massage).
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1 ReactionHey Sbraden Did U have the drop foot, numb toes. Prior to Your decompression and Fusion? Also Feel like your going crazy. Is about how Ya describe it am there doing that. Do U take anything for the pain.
I did not have a drop foot or numbness in legs, toes or feet prior to surgery. I was in a lot of pain and the surgery fixed some of it but not all. I did not feel like I was going crazy prior to surgery - it took me three years to finally get an accurate diagnosis. It was my back that was jacked up not my hips and glutes. A lot of wasted time. I feel like I am going a little nuts now because the way my back hurts is so sharp and consistently painful and it hurts to walk - I just can’t believe that my back does not have something very wrong that could be fixed. I have a prescription for Percocet but I only take it when I can’t sleep at night due to the pain. When I am not sleeping I suffer the pain so I can go out and about and try to live in the real world.
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2 ReactionsJennifer, how can I find a Mayo Dr to help me. I have extreme right side butt pain into hips with numbing in foot last 3 toes so either S1 or L5. No local doctors have been able to help. MRI doesnt show really much. I do have fusion L5 S1 2023.
@mcoffee The first thing would be to check if your insurance is accepted at Mayo. Here is the insurance information page. https://www.mayoclinic.org/billing-insurance
You can also call them to be sure.
To request an appointment, you can use this link. They will ask to have records and imaging sent in, so have that information collected. You should also write a letter describing your history and symptoms.
http://mayocl.in/1mtmR63
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1 Reaction@sbraden1234 It sounds as though they are avoiding your issues from the complex nature of what was done during your surgery with the cyst. Your symptoms are similar to mine and scans as well except for the foot drop which may be due to the excess handling of nerves in surgery. Can't remember who said it but you should definitely go to a surgeon not affiliated with this hospital or associated with that doctor. I hate sounding paranoid but I truly believe their money and careers are way more important to them than your suffering or their integrity and moral standing. Thank you for the post as it has inspired me to be proactive too, The dismissal of our pain and the exhaustion of driving to appointments when we can't afford to live cause we can't work is defeating at the least. I'm hoping you catch a good doctor soon.
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2 ReactionsI'm having neurological symptoms and ongoing headaches which made me go to 3 doctors. Recently, I went to a Neuro and Spine Specialist, on physical examination he diagnosed me with C6 Radiculopathy. I did a brian MRI (screening only), routine blood work, and Cervical spine MRI.
Both brain and blood tests were normal, cervical spine MRI showed only Straightening of the cervical lordosis, mild disc desiccation from C2-C3 to C5-C6 levels and my cervical spinal dimensions are quite narrow ranging 11mm - 11.3mm. No compression, herniated disc or bone spur.
I am really having a hard time dealing with pain everyday which does not correlate with my reports.
Can anyone suggest?
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1 Reaction@palei1997
Going through the same type of thing for over 2 1/2 years and no answers. Wish I had some suggestions for you. 😞
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2 Reactions