MRI Nerve Enhancement-struggling to get proper help
Nerve root enhancement on lumbar MRI — what should the workup look like?
A young adult in my extended family has had loss of bladder function for several months. During an attempted urodynamics test, they had no sensation of the bladder filling, so it couldn't be finished. An ER visit last month included a contrast MRI that showed enhancement of the cauda equina nerve roots — but the discharge blamed everything on constipation, and a month later nothing has improved.
No lumbar puncture, no bloodwork for inflammatory or infectious causes, no follow-up neurology exam. Between a monthslong PCP waitlist and a dismissive specialist, nobody has taken ownership of the finding.
For those who've dealt with enhancing nerve roots (arachnoiditis, CIDP, sarcoid, infection, etc.):
1. What tests actually led to your diagnosis, and in what order? Should a spinal tap be the first ask?
2. How did you get a neurology department to accept the case when the ER and local specialists had already brushed it off?
3. Does absent bladder sensation point toward anything specific in your experience?
Grateful for any direction — they just need someone to actually investigate this.
Interested in more discussions like this? Go to the Brain & Nervous System Support Group.
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Hi @yojib. Hope this comes across kind supportive way intended. Due to so many factors these days and so many needing healthcare in profound ways may I suggest contacting the healthcare systems patient advocate with specific brief facts of critical physical challenges affecting ability to function daily so that they can enlist internal resources such as referral resource center, clinical social worker, special needs dept. …Seems that gets better results than patient only inquiries not knowing the specific healthcare systems many different dept names or available resources which in turn seems to escalate appointments and tests where possible. Quickest healing to them🌈
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2 ReactionsVery helpful suggestion. Thank you!