Mom 57 Diagnosed with Stage 3 Adenocarcinoma - Looking for experiences

Posted by ur91 @ur91, Jul 16 9:31am

Hi, Mom, 57 was diagnosed with Stage 3(T3 N0 M0, HER2+) in GE junction, back in April.

Treatment completed 7/10:
- FLOT (Oxaliplatin and 5FU) 3 Treatment sessions
- Radiation: Mon-Friday - about 28 sessions

Current:
Waiting for about 4 weeks before a PET scan to determine whether she will be a candidate for surgery.

We're about a week post final radiation and her symptoms seems to be getting worse.
- Vomiting more frequently, at least once a day sometime more.
- Feeling like foods/liquids are going down harder. Feeling its getting stuck. (She never really had any blockages and has been able to eat and drink mostly normally before and during treatment.)

Future:
- She is nervous about the surgery but we were told the statistics and it seems like the team would recommend surgery.
- They might consider immunotherapy post surgery

I suppose I'm sharing this because I would like to hear if what she is experiencing in line with what others have during their journey. Do symptoms get worst post treatment, and for how long?

If you have been through this or were in a similar situation, what was your experience? Did you get surgery? Did you get "cured"?
Given her diagnosis, are the chances good to get to a cure post surgery? Do they go down she decides against it?
How risky is the surgery?

She's getting treatment at Johns Hopkins in Baltimore and they seem to be one of the best for esophageal cancers as we understand it.
They dont offer robotic surgery but their overall surgical success numbers seem to be quiet high.

Thanks for any suggestions or stories that you share.

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Profile picture for ddandh @ddandh

@goldenshadow Hi Goldenshadow. I’m about to experience the exact same treatment starting next week. I’m nervous about all of it. Even the simplest thing of how to adjust to a wedge pillow is stressful.
How was the pain and discomfort after surgery? How was eating after surgery? How much weight did you lose?
I’m concerned about losing too much weight for the first time ever! How was your eating after surgery and how is it now?
Any help would be greatly appreciated!
Thank you.

Jump to this post

@ddandh, you're asking good questions. In addition to the tips you've received already, you may also wish to check out these related discussions:

Living life after treatment and surgery for Esophageal Cancer. https://connect.mayoclinic.org/discussion/living-life-after-treatment-and-surgery-for-esophageal-cancer/
- 2 years post surgery: Any tips for sleeping and eating? https://connect.mayoclinic.org/discussion/2-years-post-surgery/

@ddandh, how is treatment going? How are you doing?

REPLY
Please sign in or register to post a reply.