Oncocytic Cell Carcinoma with angioinvasion

Posted by ejjb @ejjb, Oct 9 11:08am

Minimally invasive oncocytic carcinoma, with angioinvasion

Anyone else have a similar diagnosis? I got the pathology report, but my surgeon still hasn't called (5 business days later) with what that means for next steps.

The diagnosis does mention (so hopefully that's good news):
LIMITED TO THYROID, MARGINS NEGATIVE
7 BENIGN LYMPH NODES PRESENT

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Colleen Young, Connect Director | @colleenyoung | 1 day ago

@ejjb, as I'm sure you've learned, oncocytic carcinoma, previously known as Hürthle cell carcinoma, is a rare type of thyroid cancer originating from oncocytic cells. Angioinvasion means tumor cells have spread into the blood or lymphatic vessels. However, your report says that the cancer is limited to the thyroid and the lymph nodes tested are benign (no cancer).

Have you met with the oncologist in the meantime? What treatment has been recommended for you? How are you doing?

ejjb | @ejjb | 1 day ago

In reply to @colleenyoung "@ejjb, as I'm sure you've learned, oncocytic carcinoma, previously known as Hürthle cell carcinoma, is a..." + (show)

@colleenyoung My tumor ended up being 5.5cm, so my surgeon is removing the other half of my thyroid Nov 21st. Then, after I heal from that, they'll do radioactive iodine therapy. At that point they said they would do a total body scan to see if anything has spread. That's obviously the part that scares me. Just very hard to believe at 42 and pretty healthy that this happened, but I guess literally everyone says that.

Thank you for messaging!
~ Erin

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