Connect
← Return to Oncocytic Cell Carcinoma with angioinvasion
Discussion
Oncocytic Cell Carcinoma with angioinvasion
Thyroid Cancer | Last Active: May 18 8:22pm | Replies (37)Comment receiving replies
@colleenyoung My tumor ended up being 5.5cm, so my surgeon is removing the other half of my thyroid Nov 21st. Then, after I heal from that, they'll do radioactive iodine therapy. At that point they said they would do a total body scan to see if anything has spread. That's obviously the part that scares me. Just very hard to believe at 42 and pretty healthy that this happened, but I guess literally everyone says that.
Thank you for messaging!
~ Erin
Replies to "@colleenyoung My tumor ended up being 5.5cm, so my surgeon is removing the other half of..."
@ejjb
Hi Erin!
Just want to wish you all the best for your surgery today and a speedy recovery. 🦋
Connect
@ejjb
Hi! Wow, crazy how similar our stories are ( I am 43 )
I also have angioinvasion with clear margins. I had a total thyroidectomy in May 2025. Initially they weren’t concerned about lymphnodes. I had my uptake scan on 4th Sept, where it was determined that I do have lymphnodes affected. I was admitted and RAI done 6 Sept.
currently on “wait and see “ mode, as my next scan is only due 10 Dec to see if the RAI was effective.
There is SO much contradicting info on treatment of our conditions, so be hesitant to read up on “Dr Google “ unless it is a reputable institution.
I was fortunate that my surgeon referred me to an oncologist whom he believed had the necessary understanding of this, and the oncologist got the nuclear dept on board.
It’s scary and it’s emotional. For your own sake - ask as many questions as you can. I find that the Dr’s are quite keen to answer and explain, and honestly, it helps.
Take every day as it comes. Stay active, eat healthy and listen to your body AND your soul. This is not just a physical diagnosis.
Chin up - you’ve got this! 🦋