@ejjb
Hi! Wow, crazy how similar our stories are ( I am 43 )
I also have angioinvasion with clear margins. I had a total thyroidectomy in May 2025. Initially they weren’t concerned about lymphnodes. I had my uptake scan on 4th Sept, where it was determined that I do have lymphnodes affected. I was admitted and RAI done 6 Sept.
currently on “wait and see “ mode, as my next scan is only due 10 Dec to see if the RAI was effective.
There is SO much contradicting info on treatment of our conditions, so be hesitant to read up on “Dr Google “ unless it is a reputable institution.
I was fortunate that my surgeon referred me to an oncologist whom he believed had the necessary understanding of this, and the oncologist got the nuclear dept on board.
It’s scary and it’s emotional. For your own sake - ask as many questions as you can. I find that the Dr’s are quite keen to answer and explain, and honestly, it helps.
Take every day as it comes. Stay active, eat healthy and listen to your body AND your soul. This is not just a physical diagnosis.
Chin up - you’ve got this! 🦋
@samjdp
Wow, yeah very similar! This legit helped me feel somehow less alone, thank you!!! My team is already planning on RAI therapy just to "be safe" which I'm honestly relieved they're taking a proactive approach. What was the uptake scan like?
Sending healing thoughts and vibes your way for that Dec 10th scan!!!!