microscopic colitis

Posted by Kristi Motch @kristimotch, Jun 1, 2012

I am looking for others diagnosed with microscopic colitis. I’m new to the group and the condition. Any help or information about what my future holds would be appreciated.

Welcome back to Connect @kristimotch and @ekoltun6! You’ll notice that Connect has a new design and a lot more activity since you last were here. Coming back and sharing your updates and experience about managing microscopic colitis with diet is so valuable for newer members. Thank you!

@kristimotch What vitamin supplement are you taking? Did your doctor recommend it?
@ekoltun6 that is a remarkable turn around for your mother, which I’m sure is an incredible relief to you. I hope you can keep up with her 🙂

Have either of you, in managing MC, experienced the distention or bloated stomach that @shosh37 is experiencing?

@nategilbraith

Welcome back to Connect @kristimotch and @ekoltun6! You’ll notice that Connect has a new design and a lot more activity since you last were here. Coming back and sharing your updates and experience about managing microscopic colitis with diet is so valuable for newer members. Thank you!

@kristimotch What vitamin supplement are you taking? Did your doctor recommend it?
@ekoltun6 that is a remarkable turn around for your mother, which I’m sure is an incredible relief to you. I hope you can keep up with her 🙂

Have either of you, in managing MC, experienced the distention or bloated stomach that @shosh37 is experiencing?

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My mother’s MC did not manifest with abdominal bloating, rather she
frequently had diarrhea after eating many foods. Severe diet restriction
was the only way she could control diarrhea. Once she was put on Asacol,
diarrhea stopped and she could start eating many foods that used to give
her diarrhea.

I was diagnosed with CELIAC 6 years ago, to follow MC, I have been prescribed Budesinide, of which the cost in the USA is $1050.00/3 months, I sent my prescription to Canada, now I pay only $95.00 for 3 months, and it is working awesome!!!!!!!!!!!!!!!!!!!1

@mjgarr

I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.

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I have Thyroid, Celiac as well as MC, so YES

I’m tagging in to follow this post. I had a CT scan for something else a few weeks ago, and the scan also found diffuse thickening of the colon wall with the suspicion of colitis. All lab tests, like C Diff, came back negative, and I actually just had my colonoscopy today. My doctor said that the inflammation wasn’t visually-apparent today (even though it was at Mayo last January though those biopsies returned negative). Now I’m just waiting for the pathology to return.

@kdubois

I’m tagging in to follow this post. I had a CT scan for something else a few weeks ago, and the scan also found diffuse thickening of the colon wall with the suspicion of colitis. All lab tests, like C Diff, came back negative, and I actually just had my colonoscopy today. My doctor said that the inflammation wasn’t visually-apparent today (even though it was at Mayo last January though those biopsies returned negative). Now I’m just waiting for the pathology to return.

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You are very lucky to have a negative CDIFF. I am a 9 year recurrent sufferer, had TOXIC MEGA COLON AS MY FIRST CDIFF DUE TO THE ERROR OF IDS INFUSING ME UNNECESSARILY WITH ANTIBIOTICS. I TOLD THEM I WOUKD GET CDIFF. TGE WEEK OF MY DAUGHTERS WEDDING, TOXIC MEGA COLON. AVOID FLORIDA MDS.

@mjgarr

I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.

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I read a book by Wayne Persky – “Microscopic Colitis – What Really Causes Microscopic Colitis, Celiac Disease, and Other Autoimmune Diseases?” and it briefly mentions that early research showed the CC was frequently associated with connective tissue diseases, including RA (rheumatoid arthritis), and several other autoimmune diseases. Is it true? Don’t know.

@shosh37

Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can’t wear jeans. I have fatigue. Also no period in 2 years and I’m 33. I’m seeing a reproductive endocrinologist next month to see if this is auto immune related etc …. Been dealing with this for so long! Anyone have similar distention?

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Constantly. If you saw me a year ago I had a body like a 20 year old, I am 66. Suddenly, my stomach looks like I am 8 months pregnant whether I eat or not. Nothing fits. I cry.

@shosh37

Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can’t wear jeans. I have fatigue. Also no period in 2 years and I’m 33. I’m seeing a reproductive endocrinologist next month to see if this is auto immune related etc …. Been dealing with this for so long! Anyone have similar distention?

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I went to Mayo for my first visit and have to go back to see 3 MDs in June. I have a history of CDIFF from antibiotics. I was on Avantin for a UTI, it’s infusion. My stomach went down and a week later it was distended AGAIN

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