I am looking for others diagnosed with microscopic colitis

Posted by Kristi Motch @kristimotch, Jun 1, 2012

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

Interested in more discussions like this? Go to the Digestive Health group.

Kristi, I was diagnosed about 4 months ago with Lymphocytic colitis after weeks of discomfort. I was able to get it under control with probiotics, decreasing my caffeine intake and watching what I ate. Another doctor recently put me on antibiotics for another problem and now the colitis has flared up again. Like you, I am new to this, and would appreciate any help others have to offer.

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I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.

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Welcome to Connect, @mjgarr. I moved your message to this existing discussion about microscopic colitis in the Digestive Health group so that you can meet other members talking about MC. According to this article from Mayo Clinic, autoimmune diseases such as rheumatoid arthritis or celiac disease may cause microscopic colitis http://mayocl.in/2bmyFqr Here’s additional information from the National Institute of Health https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/microscopic-colitis/Pages/facts.aspx

Do you also have an autoimmune condition?

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@colleenyoung

Welcome to Connect, @mjgarr. I moved your message to this existing discussion about microscopic colitis in the Digestive Health group so that you can meet other members talking about MC. According to this article from Mayo Clinic, autoimmune diseases such as rheumatoid arthritis or celiac disease may cause microscopic colitis http://mayocl.in/2bmyFqr Here’s additional information from the National Institute of Health https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/microscopic-colitis/Pages/facts.aspx

Do you also have an autoimmune condition?

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I don’t know. I know I have Mast Cell. My nose runs all of the time. It never did that until I started having signs of MC.

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Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can’t wear jeans. I have fatigue. Also no period in 2 years and I’m 33. I’m seeing a reproductive endocrinologist next month to see if this is auto immune related etc …. Been dealing with this for so long! Anyone have similar distention?

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@shosh37

Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can’t wear jeans. I have fatigue. Also no period in 2 years and I’m 33. I’m seeing a reproductive endocrinologist next month to see if this is auto immune related etc …. Been dealing with this for so long! Anyone have similar distention?

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Hi @shosh37, welcome to Connect! Distension can be very frustrating to deal with especially when you don’t know the cause. I see you already connected with @cdicicco in another discussion. I’d also like to introduce you to other members who might be able to shed some light by sharing their experiences.

Please meet:
@gloriaeb, @luladavis, @uneeq1, @upnorthnancy, @nicole14 and others who are talking in the discussion called – I am a relatively healthy person with a problem “bloated belly” http://mayocl.in/2biTqQF
@jgirlatlaw who started the discussion Mystery Abdominal Distention http://mayocl.in/2bGTavb

Shosh – We’ll be interested in hearing what you find out at your appointment with the reproductive endocrinologist. @mjgarr was also asking if there is an autoimmune connection to colitis. What do you do to relieve the distention?

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If you have been diagnosed with IBS, I believe you may have fructose intolerance/malabsorption. Eliminate carbs and sugars for a month and see how your belly goes down and you feel better.

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Hi @mkenn, I moved your message to this existing discussion, as I believe you were responding to @shosh37 about her abdominal distension. I want to ensure she saw your reply.
– Shosh, have you had any issues with IBS in the past?
@mjgarr you mention having mast cells. Here’s some information about mast cells http://www.mastcellaware.com/mast-cells/about-mast-cells.html

What changes have any of you made to your diet since being diagnosed?

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@mkenn

If you have been diagnosed with IBS, I believe you may have fructose intolerance/malabsorption. Eliminate carbs and sugars for a month and see how your belly goes down and you feel better.

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I’ve had Ibs my entire life. Most constipation.I’ve done the fodmap diet and it helped 1.5 years ago when this all started and I was diagnosed with sibo. Then I took an antibiotic called augmenten and after the antibiotic this all started. And the distention never stopped. I went to mayo for a pelvic floor dysfunction biofeedback treatment. It helped my BMs but I still have distention almost a year later!!!!! The new colitis diagnosis may have something to do with it. Sooooo confusing !!!

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@nategilbraith

Hi @mkenn, I moved your message to this existing discussion, as I believe you were responding to @shosh37 about her abdominal distension. I want to ensure she saw your reply.
– Shosh, have you had any issues with IBS in the past?
@mjgarr you mention having mast cells. Here’s some information about mast cells http://www.mastcellaware.com/mast-cells/about-mast-cells.html

What changes have any of you made to your diet since being diagnosed?

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Thanks guys! This is great. I had Ibs forever!! This is completely different then my Ibs. I wish I had my Ibs over this distention

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@mjgarr

I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.

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It would seem that there is an autoimmune component. Many people who have MC also have thyroid autoimmune issues. I would recommend that you visit perskyfarms.com The website is devoted to people with MC. I have found the information posted by users at this site really helpful. I was diagnosed with MC in 2012 and have lived mostly symptom free after making a few small changes to my diet.

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@mjgarr

I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.

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Hi @kristimotch 🙂 what diet changes did you make?
And did you have terrible Distention??
I got my MC in remission from taking Lialda (as in i dont have the violent Diarrhea today) but the distention is still awful… and i am just not sure the distention is completely related to the MC.. Thanks!!

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