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MGUS & Rash
Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist.
I have also got some rash in my body that is not itchy but haven't gone for last 6 weeks. I am going to see dermatologist tomorrow, but I want to know if these rashes are related to MGUS or cancer? I live in Canada, so it means I have to wait until specialist see me.
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Hope all goes well with your appointment ..sorry not sure about rash i was diagnosed just before xmas so still new to this myself x
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3 Reactionshels I'm glad your going to dermatologist. My Hematologist wants me to go to dermatologist because they don't deal with rashes (I have cold induce urticaria / rashes ) 9 rare disease including PPV-FM ; symptoms over lap or interfere with other symptoms "making harder to know what is what" There is specialist for everything; only treat that one of my symptoms, which can be frustrating! Wish we had doctor for everything and go once but Good luck and take care - let us know and keep us up-dated hels | @hels hope you find answers
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1 ReactionThank you, this is new, and I am trying to get more information. 🙂
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3 Reactionsi will see the dermatologist in an hour and let you know if he can diagnose it. thanks for sharing it.
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3 ReactionsI saw the dermatologist, he took a biopsy from my skin rash, hopefully i get some answers.
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5 Reactionssamraz | @samraz Prayers (hope you find the answers) It's like holding your breath while underwater, just waiting for things to make sense. Hang in there. We are cheering you on and care deeply! Thanks for keeping me posted and let us know!
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1 ReactionRecently diagnosed with CLL. Have had a severe rash on lower legs for 6+ months...itchy and scaly. Hematologist is not sure it is related to CLL and dermatologist biopsy was inconclusive. Has anyone else with CLL experienced this.
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1 ReactionHi I have been diagnosed with CLL now since 2020 and get severe itchy skin and rash and the only thing that I use to control it is an antihistamine which i buy over the counter called Cetrine and it works extremely well.
I was taking one a day now I can stretch it out to maybe one every three or four days.
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1 ReactionI do not have CLL, but had a rash for 9 months that sounded identical to yours. After trying several different things, my dermatologist ordered low dose Naltrexone. It cleared up completely in 2-3 days!
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2 ReactionsHello:
I’ve had a terrible rash on my arms and legs for over six months. That’s how I was diagnosed with MGUS. My dermatologist suspected a kidney ailment. Then my kidney doctor suspected cancer.