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Does anyone have neuropathy related to MGUS?
I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does anyone know of any supplements or drugs that help alleviate the numbness?
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@dunewalker 😂 same.
@allessio77
After only two sessions I have had no adverse reaction to the rituximab - no nausea, was able to follow normal routine by the next day.
I tire easily but I’m 84 years old, so no surprise there.
I feel blessed. 🤗
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1 Reaction@dunewalker Thanks...let us know after the 4 weeks. and after a month or so. Getting some actual real life experience is important to my decision!!
I have neuropathy and MGUS, my doctor says it’s not related but I wonder?
@danaufkes hello and welcome to Mayo Clinics Connect. I hear a lot from members that their physicians don’t attribute neuropathy to MGUS. There are some resources that I believe may be helpful to you. https://www.foundationforpn.org/living-well/
Physicians are reluctant to jump to the conclusion that the dots between MGUS and PN are connected without more data. If you want to deep dive into the literature there is some out there. My hematologist/oncologist referred me to a neurologist who prescribed gabapentin, which I did not like because it made my fingers tingle and it was uncomfortable. So he discontinued that and prescribed pregabalin, which seems to be somewhat helpful. I had very sharp pains in my toes and the balls of my feet before the pregabalin and I rarely have that symptom now. I still have numbness. I do have type two diabetes, which is very well controlled and that’s far easier to connect to the neuropathy. Either way, reversing the symptoms of PN isn’t possible but the medication does make me more comfortable.
To what does your doctor attribute your peripheral neuropathy?