Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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Clifford Gerwig | @cgerwig66 | May 12 10:55am

Dose any one with MGUS have a problem with low blood sugar.

Clifford Gerwig | @cgerwig66 | May 12 10:57am

In reply to @pmm "Clifford do you have any other health issues? I’m so sorry you aren’t getting the answers..." + (show)

I'm starting to have spells my blood sugar gets really low and I'm not diabetic.

pmm | @pmm | May 12 11:49am

In reply to @cgerwig66 "I'm starting to have spells my blood sugar gets really low and I'm not diabetic." + (show)

My blood sugar levels are overachievers.

cherylmcg | @cherylmcg | May 13 10:22pm

In reply to @cgerwig66 "I was diagnosed with mgus over a year ago. Since then I have been really sick..." + (show)

I have had MGUS for about 5 years which is low but slowly increasing. I have neuropathy and fatigue. I recently saw a number of super healthy women playing pickleball in the evening and was overcome with sadness at my disability.

melij | @melij | May 14 7:31am

In reply to @cherylmcg "I have had MGUS for about 5 years which is low but slowly increasing. I have..." + (show)

cherylmcg such a valid feeling – losing out in so many activities has been an issue for me as well. My friend said it was like grieving a loss and to acknowledge those feelings. I have learned to adjust how I do sports to my changing level of ability and not worry about those super healthy women …..xo 💓

Clifford Gerwig | @cgerwig66 | May 14 7:34am

In reply to @cherylmcg "I have had MGUS for about 5 years which is low but slowly increasing. I have..." + (show)

I hear your pain the neuropathy and fatigue are horrible it changes your life !!!

cherylmcg | @cherylmcg | May 14 4:28pm

Thanks for the hugs and empathy. I do the best I can but now also find RA May be causing lung disease-I guess we all have to face our decline…..

sissypuss | @sissypuss | May 16 4:07pm

In reply to @gingerw "@mjlandin Welcome to Mayo Clinic Connect. There are several discussions here in the Blood Cancer &..." + (show)

I have it. I just found it on my chart and don’t know what to do next.

susanh824 | @susanh824 | May 17 6:28am

I’ve had it for somewhere between 10-15 years. I see a hematologist and oncologist once a year while the numbers have increased steadily, I am not at the smoldering level yet, and my oncologist says I have only a 10% chance each year of developing multiple myeloma. I’m 64.

leslie2121 | @leslie2121 | May 17 8:24am

In reply to @susanh824 "I’ve had it for somewhere between 10-15 years. I see a hematologist and oncologist once a..." + (show)

Hi Susan:
I was diagnosed about 2 years ago with MGUS from routine physical- trying to explore causes of osteoporosis- also newly discovered. I’m also 64, and thought I was healthy.
I’ve taken some powerful osteoporosis medication and trying to determine if that’s why I have more fatigued or if it’s from the MGUS?
MGUS supposedly is asymptomatic but I wonder.
Thought I’d reach out.
I’m supposed to be a little above average risk but who knows about these statistics,right?
Wishing you good health- encouraging to hear you’ve been stable for 10-15 years.