Does anyone else have MGUS?

@theadosi As far as diet, I eat mostly vegetables, seafood, some chicken and limited amounts of beef or lamb. 2-4 alcoholic drinks per week.

@rachelziman72 hey Rachel. Thank you for your reply! I am trying to stay positive but battling with the anxiety from uncertainty. Have you had MGUS long? Do you have any tips for dealing with the worry? Thank you 🙂

@ajbonett hey there. I also have low ferritin and MGUS. My last ferritin level was 14. How did the iron infusion go? I’m looking at getting it, but am anxious to do anything with my blood right now. Thank you for any insight!

I was diagnosed in 2013. They found I had almost no iron stores when anyone marrow biopsy was done. I don't know that my stores are any better since then. I was not able to get iron transfusions (thanks insurance, though I head it is unpleasant) so I had to take these huge horse pills. But I couldn't take it the amount of months necessary due to it upsetting my stomach. I can't remember how far I got but I had like several bottles left after I stopped. I have never been able to get checked for my iron stores since then. I have been chronically tired for a while and lately it has been much worse so thinking maybe iron is really low. Hard to get it checked. The last time I was checked for MGUS was in 2019 and there was a little improvement. I told my doctor that I was finally ready to get checked again and he said they can do the tests and the one to check iron stores...I had labs done last week. Neither year was part of it. I messaged them in the portal and the nurse said they can use the CBC test and mine is fine. But you can have normal CBC results and have MGUS, it's not concerning generally. They didn't find anything weird originally that I recall .but it was 2013 so ..I just know it was a different test or tests. I will probably have to find a hematologist who specializes in MGUS and and iron.... so I already found some locally. Mayo Clinic would be a great option but don't want to drive that far.