MGUS diet: Any tips on food to enjoy or prevent progression?

Posted by sstillwell @sstillwell, Aug 13, 2021

Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more on fruits. Anyone adhered to special diet and have not had MGUS progress for years? Thank you, Susan

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

raye | @raye | May 9, 2022

In reply to @deryl50 "Has anyone had MGUS discovered after taking the COVID vaccine?" + (show)

Can only say that my PCP informed that after 2 Moderna Innoculations + 2 M boosters, I do not have covid immunity.
Possibly this is due to IgM kappa MGUS dx 7 years ago. Now suggested to take extremely new med: Evusheld. Anyone have any experience with it? Thank you! @rae

stevonmfl | @stevonmfl | Jan 31, 2022

In reply to @colleenyoung "@stevonmfl, I noticed that you wanted to add a URL to a video. You will be..." + (show)

Yes, please post it

Steven

Colleen Young, Connect Director | @colleenyoung | Jan 31, 2022

In reply to @stevonmfl "Here is latest info that I could find re diet and MGUS, SMM progression. Recent and..." + (show)

@stevonmfl, I noticed that you wanted to add a URL to a video. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam and it looks like it would be helpful for members in this discussion about MGUS and diet.. Please allow me to post it for you.

Studying The Relationship between Myeloma Progression and Diet
Recorded on January 25th, 2022 as part of the MGUS/Smoldering Myeloma Patients Chapter in the Myeloma Crowd Community by HealthTree Program with Dr. Urvi Shah.

stevonmfl | @stevonmfl | Jan 31, 2022

Here is latest info that I could find re diet and MGUS, SMM progression. Recent and VERY GOOD and informative. It is on YouTube under heading of Studying The Relationship between Myeloma Progression and Diet

hi2l | @hi2l | Dec 6, 2021

Thank you for your words of encouragement. I'm not really fearful about the MGUS or CAD. It's just the realization that I have health issues that have no answer. In a way that's a blessing since the treatment for ITP, which requires weekly blood tests and infusion at the regional Cancer and Hematology Center are bad enough, more treatments would take even greater time from the daily activities that I enjoy. I am thankful that none of the three conditions have any symptoms that I actually notice. I read on social media support groups where many people suffer from fatigue, headaches, joint pain, depression and more.

Colleen Young, Connect Director | @colleenyoung | Dec 6, 2021

In reply to @hi2l "I was diagnosed with ITP, CAD (Cold Agglutinin Disease) and MGUS after a pre-surgery CBC in..." + (show)

Oh gosh, @hi2l. I'm sorry that the comments here have made you more fearful than necessary. On average, about 1% of people with MGUS go on to develop multiple myeloma each year. That can change over time, but it shouldn't be cause for additional concern. Your health care team is obviously monitoring you closely. Awareness need not equal worry. I like to call this active surveillance and getting on with life.

hi2l | @hi2l | Dec 2, 2021

I was diagnosed with ITP, CAD (Cold Agglutinin Disease) and MGUS after a pre-surgery CBC in 2018 for a torn rotator cuff found platelets too low to proceed. Hematologist ordered a bone marrow biopsy resulting in my diagnosis. Was told there was no treatment for the CAD and MGUS. I have been treated with prednisone, IVIG, Promacta and now Nplate for the ITP. Platelets were 10 at the start and are now in mid 80's. I wasn't too concerned with the CAD and MGUS since I'm still going through weekly infusions of Nplate this past year. After reading the comments on this post I'm wondering if I should be concerned about the potential chance of MGUS changing to cancer. It seems like my body is trying to attack my blood in a number of different ways.

mountain009 | @mountain009 | Dec 1, 2021

In reply to @colleenyoung "Welcome, Patty. I love that you put your pending retirement date in your bio. Working until..." + (show)

Thanks Patty and Colleen...........great questions. I am also newly diagnosed and learning everyday. My oncologist has NOT SPOKEN mgus in urine and blood.

Patty, Volunteer Mentor | @pmm | Nov 30, 2021

In reply to @colleenyoung "Welcome, Patty. I love that you put your pending retirement date in your bio. Working until..." + (show)

Colleen, I have pretty much always danced till I drop… Metaphorically speaking. I’ve had a very full, rich life and have always felt privileged even though there have been ups and downs.
Last spring I was in a motor vehicle accident in which we were rear ended while traveling and I had neck pain. In the workup that followed they found a “lesion“ on my spine at C2. The blood tests found the pesky m protein in my blood work. CTs, urinalysis, more blood tests…here I am. The lesion is unrelated, it seems and is attributable to Osteoarthritis but I am grateful that it is MGUS and not multiple myeloma. As I’ve been reading about MGUS, I find that this accidental discovery is typical for the diagnosis.
So here I am with more to discover.

Chris, Volunteer Mentor | @auntieoakley | Nov 30, 2021

I would like to post this link to the international myeloma foundation. They have an amazing amount of information available on their website. They also have educational virtual meetings that you can join. You can also learn about the many treatments that are now in the toolbox for myeloma. I believe that translates into hope.
https://www.myeloma.org/

View More View Less

Please sign in or register to post a reply.