MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Posted by jart @jart, May 15, 2022

The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with this? Does the urine test supersede the serum testing? Either way, is there anything to do other than “watchful waiting?”

BTW, he also has Dysautonomia (Diabetic T2).

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@cctoo

Breast cancer

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@cctoo Catherine, are you telling us the biopsy result in your online chart is saying you have breast cancer? Has the doctor or their office reached out to you, yet? If not, this is not a pleasant way to start your weekend, is it?

How are you feeling right now?
Ginger

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@cctoo

Got results next day on MyChart.org...no call from anyone!! So I am too afraid to look...just trying to feel better from core needle biopsy...if results come so quickly is that good or bad sign??? Wednesday biopsy..results Thursday!!

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Catherine, I can understand being too afraid to look and I think it might be a good idea to wait until you can discuss with your doctor. Some people like to get the results as soon as they are available, but interpreting them is best done with a professional. You don’t want to worry unnecessarily.

How are you doing?

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@cctoo

Got results next day on MyChart.org...no call from anyone!! So I am too afraid to look...just trying to feel better from core needle biopsy...if results come so quickly is that good or bad sign??? Wednesday biopsy..results Thursday!!

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Breast cancer

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@colleenyoung

@cctoo, I hope you get to the bottom of this. What were the results of the biopsy?

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Got results next day on MyChart.org...no call from anyone!! So I am too afraid to look...just trying to feel better from core needle biopsy...if results come so quickly is that good or bad sign??? Wednesday biopsy..results Thursday!!

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Anyone have bc diagnosis without breast lump...just armpit enlarged lymph node?

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@colleenyoung

@cctoo, I hope you get to the bottom of this. What were the results of the biopsy?

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Have biopsy tomorrow... Please 🙏

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@cctoo

I have mgus and for 2 years my monocytes, lymphocytes, and leukocytes absolute are high..and now have enlarged lymph node in armpit and getting biopsy on 8th june....scared might be lymphoma of some kind....also ratio was high now..never feel really well. Have awful pain, low fever low in abdomen like bladder infection. Dr said all blood tests normal!!!!!

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@cctoo, I hope you get to the bottom of this. What were the results of the biopsy?

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I have mgus and for 2 years my monocytes, lymphocytes, and leukocytes absolute are high..and now have enlarged lymph node in armpit and getting biopsy on 8th june....scared might be lymphoma of some kind....also ratio was high now..never feel really well. Have awful pain, low fever low in abdomen like bladder infection. Dr said all blood tests normal!!!!!

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@confusedkoala Hi, CK. Believe me, you are not alone in this. You may not be getting the support from the medical community you need, but you are not alone. I am in about the same boat. One of my sisters has died of myeloma of some kind, two others are close to death. 5 of the nieces and nephews are on the close death road, and I have dX of Gelsolin and several other diseases LGMD, leukemia, CKD, and have had 55 cancer-related surgeries and other procedures. Only one doc in the world seems to care, and he is 2,500 miles away. But we who have these buckets of crap, or have devoted our lives to the support of this community, have to cling together. So unload on us whenever you need to. Know that most of us will read every word you print, whether we respond or not. And if we have a thought we believe will be helpful, we will tell you. oldkarl

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Unfortunately my sister died of multiple myeloma 5 years ago and protein was found in my bone marrow and I go every three months to check the m Spike. I never feel like I know the difference between what's going on with my undifferentiated tissue disease or the issue with my blood work. I feel like when I mention the things about the free Kappa myeloma I'm just ignored, I really don't want to make a mountain out of a molehill but I do not want to end up like my sister who's her come after 5 years of this horrible disease. Thank you so much for listening and taking the time to answer me I really do appreciate it and if you have any other insights please feel free to share as I feel sometimes like I'm all alone in this

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