← Return to MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

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@becky1024

Kappa light chain IgM- MGUS
Anyone else suffering from MGUS? Mine is slowly progressing and at present is precancerous cells. My B cells are mutated and crowding out healthy ones. My lymphocytes level is going lower and below normal, while my neutrophils level is above normal (not good). With having IgM means my MGUS is rare. What symptoms do others with IgM have? Mine are getting worse and more being added as it’s progressing. My platelet count is sinking and I’m bleeding more. My lymph glands are getting involved above and below midline (not good). My lymphatic drainage system in my legs are blocking up, causing my legs to be swollen. My bad guys are causing a toxin to be released that causes it to come up to the surface of the skin. This triggers itching so intense, I claw myself bloody because I can’t feel pain. Why can’t I feel it, simple, my bad guys ate the coating of Myelin off the nerves for lunch, killing them, (great huh!!!) The baddies are also killing the nerves in both arms and hands, (I just can’t win). There’s more symptoms but you get the gist of what’s happening to me. Anybody else doing this great?

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Replies to "Kappa light chain IgM- MGUS Anyone else suffering from MGUS? Mine is slowly progressing and at..."

Hi Becky,
I moved your message to this existing discussion about light-chain MGUS to this existing discussion.
- MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio https://connect.mayoclinic.org/discussion/mgus-and-quite-high-free-kappa-light-chain-and-kappa-lambda-ratio/

I did this so you can connect with fellow members like @jart @raye @confusedkoala and @oldkarl.

Becky, it sounds like your symptoms related to IgM are really challenging. I'm sorry to hear things are getting worse. Have you been given any solutions to deal with the itch?

@becky1024 I am a member of the same club, IgM light chain MGUS, that morphed into multiple myeloma.

For the itching, I use a rich vitamin E cream, and keep the area moisturized. For the lymphatic issue, try massage. Nerve issues in the hands and arms are being dealt with by using topical and systemic CBD.

Be gentle on yourself.
Ginger