MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Posted by jart @jart, May 15, 2022

The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with this? Does the urine test supersede the serum testing? Either way, is there anything to do other than “watchful waiting?”

BTW, he also has Dysautonomia (Diabetic T2).

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Kappa light chain IgM- MGUS
Anyone else suffering from MGUS? Mine is slowly progressing and at present is precancerous cells. My B cells are mutated and crowding out healthy ones. My lymphocytes level is going lower and below normal, while my neutrophils level is above normal (not good). With having IgM means my MGUS is rare. What symptoms do others with IgM have? Mine are getting worse and more being added as it’s progressing. My platelet count is sinking and I’m bleeding more. My lymph glands are getting involved above and below midline (not good). My lymphatic drainage system in my legs are blocking up, causing my legs to be swollen. My bad guys are causing a toxin to be released that causes it to come up to the surface of the skin. This triggers itching so intense, I claw myself bloody because I can’t feel pain. Why can’t I feel it, simple, my bad guys ate the coating of Myelin off the nerves for lunch, killing them, (great huh!!!) The baddies are also killing the nerves in both arms and hands, (I just can’t win). There’s more symptoms but you get the gist of what’s happening to me. Anybody else doing this great?

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@gingerw

cctoo Do you have family or close friends nearby to reach out to? Of course, we are here on Connect, but having someone right there with you can make all the difference.

Gentle hugs,
Ginger

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My daughter is very ill but we talk..have friends I talk with...but been isolated for two years due to covid.. Have been alone for every holiday and birthday.... I feel better now in bed nowto read..with my ice pak!! Thank you so much Ginger....I feel grateful for you all.

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@cctoo

Yes, and I feel bad..pain as now have two lumps instead of one small lymph node.. Feel s alone will sleep early

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cctoo Do you have family or close friends nearby to reach out to? Of course, we are here on Connect, but having someone right there with you can make all the difference.

Gentle hugs,
Ginger

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@gingerw

@cctoo Catherine, are you telling us the biopsy result in your online chart is saying you have breast cancer? Has the doctor or their office reached out to you, yet? If not, this is not a pleasant way to start your weekend, is it?

How are you feeling right now?
Ginger

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Yes, and I feel bad..pain as now have two lumps instead of one small lymph node.. Feel s alone will sleep early

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@cctoo

Breast cancer

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@cctoo Catherine, are you telling us the biopsy result in your online chart is saying you have breast cancer? Has the doctor or their office reached out to you, yet? If not, this is not a pleasant way to start your weekend, is it?

How are you feeling right now?
Ginger

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@cctoo

Got results next day on MyChart.org...no call from anyone!! So I am too afraid to look...just trying to feel better from core needle biopsy...if results come so quickly is that good or bad sign??? Wednesday biopsy..results Thursday!!

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Catherine, I can understand being too afraid to look and I think it might be a good idea to wait until you can discuss with your doctor. Some people like to get the results as soon as they are available, but interpreting them is best done with a professional. You don’t want to worry unnecessarily.

How are you doing?

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@cctoo

Got results next day on MyChart.org...no call from anyone!! So I am too afraid to look...just trying to feel better from core needle biopsy...if results come so quickly is that good or bad sign??? Wednesday biopsy..results Thursday!!

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Breast cancer

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@colleenyoung

@cctoo, I hope you get to the bottom of this. What were the results of the biopsy?

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Got results next day on MyChart.org...no call from anyone!! So I am too afraid to look...just trying to feel better from core needle biopsy...if results come so quickly is that good or bad sign??? Wednesday biopsy..results Thursday!!

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Anyone have bc diagnosis without breast lump...just armpit enlarged lymph node?

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@colleenyoung

@cctoo, I hope you get to the bottom of this. What were the results of the biopsy?

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Have biopsy tomorrow... Please 🙏

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