Metastatic Breast Cancer treatment options

Posted by junec @junec, Oct 13, 2020

Hello all, Firstly thank you for creating this forum. Late August I was diagnosed with stage 4 MBC that has gone to @3 bones and through the skeletal system. Bone biopsy confirms BC in bones but PET shows the bones are not hypermetabolic where the breast & lymph are hypermetabolic. I'm in Raleigh NC. My surgical & medical oncologist have ruled out surgery, chemo & rad leaving me with one option, Ibrance with an inhibitor. I've read the trials ( 2016-17) on Ibrance and it seems like 79% of participants have lower immune responses. Firstly, Like to know if anyone has feedback on a newer protocol/drug regime as this seems to have been developed 3-4yrs ago. And anyone have personal experience with Ibrance if they could let me know what their day is like, quality of life. I understand everyone's different… I'm 68yrs, living alone and this decision weighs heavy on my shoulders. Thank you for your responses.

junepic2020a

Liked by dthayer

@junec

I'm just so scared all of a sudden,

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@junec
Hang in there and take one day at a time. If you have a local breast cancer support group or cancer support group you can go to, please sign up. Right now in our area, we just have WebEx or Zoom meetings, but it still helps considerably to know there are others out there that share same feelings. This is a GREAT site to be out in addition to local groups. Sending virtual hugs to you.

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@junec

I'm just so scared all of a sudden,

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@junec
Of course you are… that's a perfectly normal reaction. There are days when we all feel overwhelmed by the entire cancer journey; but just when we think that we can't take it any more, we get busy with something and the feeling passes. Managing those feelings has been aggravated by the Covid situation, in my view; the isolation makes us focus (too much) on ourselves. That is the ideal time to pick up the phone and call a friend… see how she is doing and whether there is anything which you can do for her (share a recipe, recommend a book, send a card, etc.); it's also a good time to spend ten minutes in meditation or deep-breathing exercises… send out a good intention into the universe for peace and wellness; or call a pastor and ask that s/he pray for and with you. The anxiety will pass and you will get back to your life. Know that the entire MayoConnect community walks with you, and is rooting for the best of outcomes for you.

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@junec

I'm just so scared all of a sudden,

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@junec I think everyone that is on this forum would agree that it’s very normal & ok to be scared! I think sometimes the ‘possible’ side effects & the fear of what will happen creates much fear & anxiety! Make sure that you trust your Dr & support staff. And surround yourself with positive & supportive people! I was very scared & overwhelmed at first-I am now focusing on self care, prayer & appreciating each day. (And I feel very well most days!)

Liked by trixie1313, elizm

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@junec

I'm just so scared

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Checking in @junec. How are you doing today?

Liked by djwc

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@colleenyoung

Checking in @junec. How are you doing today?

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I have been thinking about you as well, @junec. I hope you are staying strong. You have a support group here that you can always rely upon.

Liked by elizm, djwc

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@colleenyoung

Checking in @junec. How are you doing today?

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Going to another Dr Wed that is more of a specialist in mBC. I'm trying to go with an open mind and want to establish a plan at least an AI and see how I ca tolerate that. Thank you for your thoughts.

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@junec

Going to another Dr Wed that is more of a specialist in mBC. I'm trying to go with an open mind and want to establish a plan at least an AI and see how I ca tolerate that. Thank you for your thoughts.

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@junec
Good for you! If one A1 doesn't work for you, don't be shy about asking to switch to another one. I started with anastrozole, then tried letrozole, but finally was switched to exemestane and have been on that without many problems. What doesn't work for one patient may be better for another. It's okay to ask questions and switch if need be. All the best to you.

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