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Metastatic breast cancer: Anyone else?
Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??
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Hi all, well, since my last post, I was not sure of the side effects of my chemo drug, VERZENIO,
AND MY EXEMESTANE, I AM HAPPY TO SAY I AM JUST TIRED FROM THE TWO DRUGS
WITH NO OTHER SIDE EFFECTS SO FAR.
I BELIEVE IN DRINKING A FULL GLASS OF WATER WITH EACH TIME I TAKE THESE PILLS.
I ALSO MAKE SURE I EAT SOMETHING JUST BEFORE I TAKE THE PILLS .
NO NAUSEA, NO DIZZINESS, NO DIARRHEA.
MY RASH IS ALMOST GONE, SO I AM A HAPPY CAMPER FOR NOW.
UNTIL MY NEXT PET SCAN DECEMBER TO SEE IF THE DRUGS ARE WORKING.
I FEEL IT IMPORTANT THAT WE SHARE WHAT WORKS WITH THESE DRUGS.
THANK YOU ALL FOR YOUR KIND WORDS; THEY MEAN EVERYTHING TO ME.
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4 ReactionsI have been posting in another area but also wanted to post here because I have just found out I have been diagnosed with metastatic cancer to a lymph node in porta hepatic area. I had laparoscopic biopsy to confirm this week. The path report states positive for metastatic carcinoma of porta hepatis lymph node positive for GATA3 and CK7. It also states benign with no metastatic carcinoma in liver wedge resection. This leads me to believe it is not in the liver itself but confined to the lymph node that is attached to the porta hepatic area which are blood vessels which feed the liver and other organs. But I will need to speak with oncologist for clarification. It is confusing.
Can anyone share what types of treatment they are on for metastatic breast cancer to liver or lymph nodes?
I had invasive lobular carcinoma of breast in 2013. I had double mastectomy with 8 rounds of chemo and 5 years of AI. I was ER positive at 80% and HEr2 negative. I always knew there was a high risk of return so here I am ready to do whatever it takes to live .
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4 ReactionsYes, I have breast pain that comes and goes but when the pains come, it’s very sharp.
Mary
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1 ReactionThank you. None of that has been mentioned yet but my sense is that my docs want my mastectomy (double) to be done before we try other modalities for the skin. I’m still several months away from surgery. Another MRI next week so we’ll see😏
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2 ReactionsWelcome, @mjwhearts22. It is my understanding that metastasis to the skin can sometimes be treated, but not cured. Have you had any treatments like electrochemotherapy, special dressings or even antibiotics? These may be options depending on a variety of factors. Do you have pain?
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2 ReactionsI’m so sorry you are having to deal with this. I, too, have MBC. Diagnosed with invasive lobular breast cancer last April, I found that it had metastasized in my skin which is not treatable. Like you, I’m on exemestane and trying to shrink all the tumors enough to be able to get clear margins for the mastectomy. While there is no cure for breast cancer in the skin, I continue to pray that it doesn’t metastasize anywhere else. I will always have cancer. My heart goes out to you on so many levels. We must do everything we can to get to the other side of cancer. Please know you have thousands of supporters.
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5 ReactionsI HAVE READ ALL OF MY FELLOW COMMENTS ON THEIR JOURNEY WITH MBC.
IF NOTHING ELSE, I TAKE COMFORT IN THAT I AM NOT ALONE OUT THERE WITH MY MBC.
I AM IN MY FIRST WEEK WITH THE CHEMO DRUGS VERZRNIO AND EXEMESTANE.
MY MBC HAS SETTLED IN MY LUNGS, AND I WILL HAVE A PETSCAN IN THREE MONTHS TO SEE IF THE CHEMO DRUG IS WORKING.
I ALSO HAVE THIS RASH ON MY LEGS, WHICH STARTED BEFORE ANY CANCER DRUGS BEGAN.
I NOW HAVE TO TAKE PREDNISONE FOR TWO WEEKS TO STOP THE RASH.
I AM SCARED BECAUSE EVERYTHING HAS SIDE EFFECTS, AND THIS DRUG CAN CAUSE A LOT OF SIDE EFFECTS, THE SAME AS MY CANCER DRUGS DO.
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4 ReactionsThis is my sister im speaking of and not myself. However I am trying to learn from others n educate her. She isn't being proactive in reading about cancer. Im trying to teach her. Im a health nut n she is not. She is taking letrozole n Ibrance. Metastasis to the spine...lower back n upper neck.. she has scans again in 3 months. Thanks...
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2 ReactionsOh @ampeltekian, I'm so sorry to hear that your fear became true and that your recent PET scan and biopsy confirmed that you hav metastatic breast cancer. You're not alone.
I moved your message to this existing discussion:
- Metastatic breast cancer: Anyone else? https://connect.mayoclinic.org/discussion/metastatic-breast-cancer-to-the-bone/
I did this so you can easily connect with other members living with metastatic breast cancer like @mssewest @hockeymom25 @boathouse @karenpow @leeann66 @eku @millard @boogz @tessspike @auntieoakley and others.
@ampeltekian, did you talk with your team about next steps or treatment yet? Where has the cancer spread?
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1 ReactionMetastatic Breast Cancer Recurrence
Pet Scanned
Biopsy shows HER2+
Does anyone know what to expect?
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1 Reaction