Metastatic breast cancer: Anyone else?

Posted by rae3 @rae3, Oct 6, 2016

Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??

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rae3 | @rae3 | Oct 8, 2016

In reply to @colleenyoung "Welcome @rae3. I'm glad you found us. I'm tagging fellow Connect members @wandering @barnum @silky59 and..." + (show)

Thanks for responding...I am tolerating the injections quite well for almost two years now. Only side affect seems to be about 5 fingernails have deteriorated on the tips. I started taking Solary brand biotin daily and using Hansen nail hardener and that helps strengthen the nails. I am thankful I can still do many things with the help of pain meds. I am being treated in southwest Florida and have yet to meet anyone with MBC. Nice to know this site is available.

wandering | @wandering | Oct 6, 2016

Rae3: welcome to our group. I suppose not where you wanted to be after 16 years but ---. Anyway, I too am getting xgeva shots (every three months) and faslodex every month. My tumor markers are on the rise so my dr is looking into something else. Have an appointment next month so we should have a plan after that. Keep in touch and keep that good attitude.

Colleen Young, Connect Director | @colleenyoung | Oct 6, 2016

Welcome @rae3. I'm glad you found us. I'm tagging fellow Connect members @wandering @barnum @silky59 and @saltis, all of whom have shared about having metastatic breast cancer. In the case of Silky, it is also bone metastases.

Rae, It must've been hard to believe that the cancer came back after 16 years. Soon after treatments one tends to think every ache and sniffle could be a sign that cancer has come back, but after 16 years, I bet this came as a shock. How are tolerating the injections?