Metastatic breast cancer: Anyone else?

Posted by rae3 @rae3, Oct 6, 2016

Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??

Interested in more discussions like this? Go to the Breast Cancer Support Group.

I’ll be starting falsodex treatment soon. I was on Ibrance for 2 and a half years but it stopped working. Now we’re trying this.

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Profile picture for louis0705 @louis0705

Faslodex. It’s a once a month injection. Looking for a oncology clinic close to home to start my injections. I currently just gi to Mayo for everything and I’m in Tennessee

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I am hoping you find a more local oncologist for your care. Have you asked your team at Mayo about helping you find local care?

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Profile picture for Chris, Volunteer Mentor @auntieoakley

MBC has its own set of treats it brings to the day. I try to keep a sense of humor about this. I am glad your anxiety is lessened. I find the act of letting go and letting God is something that I have to practice daily. MBC treatments have come a long way in a short time. There are quite a few now. Can you tell me which injections you are asking about?

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Faslodex. It’s a once a month injection. Looking for a oncology clinic close to home to start my injections. I currently just gi to Mayo for everything and I’m in Tennessee

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Profile picture for windyshores @windyshores

I finished 5 years of Femara and was basically told no need to schedule visits. COVID was a factor in me finding another doc. I am having so many other problems, I need to check in with an oncologist who provided a second opinion and I liked better.

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Good for you, if you have a primary care doctor that you like, he could order that too. I would still ask to follow up at least annually with an oncologist. Please do ask for an answer to this bone pain, if it comes back negative, then celebrate. More information is never bad in my mind. Are you comfortable asking your primary care for it?

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Profile picture for Chris, Volunteer Mentor @auntieoakley

For me it is simple, I go to my doctor and say I am having a lot of bone pain may I please have a bone scan. I am worried about the cancer coming back. My doctor is so good he will either just order it, or talk to me about what else he might do to check on that. The osteoporosis can cause bone pain as well, but if that is worsening then that is a signal from your body. How soon before you have a doctors appointment? What kind of doctor is monitoring you for cancer?

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I finished 5 years of Femara and was basically told no need to schedule visits. COVID was a factor in me finding another doc. I am having so many other problems, I need to check in with an oncologist who provided a second opinion and I liked better.

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Profile picture for windyshores @windyshores

I had breast cancer in 2014, grade 3 with lymphovascular invasion. I had a double mastectomy, no chemo or radiation, hormone treatment only. With arthritis, osteoporosis and fractures, I have a lot of bone pain. How do we ever know to ask for a bone scan for MBC? I am sorry you are dealing with this!

Jump to this post

For me it is simple, I go to my doctor and say I am having a lot of bone pain may I please have a bone scan. I am worried about the cancer coming back. My doctor is so good he will either just order it, or talk to me about what else he might do to check on that. The osteoporosis can cause bone pain as well, but if that is worsening then that is a signal from your body. How soon before you have a doctors appointment? What kind of doctor is monitoring you for cancer?

REPLY

I had breast cancer in 2014, grade 3 with lymphovascular invasion. I had a double mastectomy, no chemo or radiation, hormone treatment only. With arthritis, osteoporosis and fractures, I have a lot of bone pain. How do we ever know to ask for a bone scan for MBC? I am sorry you are dealing with this!

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Profile picture for louis0705 @louis0705

I was diagnosed dec 2018 with Mbc. It is in my colon as well as some bones. My Ibrance stopped working now we are deciding on treatments to keep it from spreading. I hate this Im tired of always wondering what’s next. I have given it all to God and it has calmed me tremendously. Tell me more about your injections my dr has talked about these.

Jump to this post

MBC has its own set of treats it brings to the day. I try to keep a sense of humor about this. I am glad your anxiety is lessened. I find the act of letting go and letting God is something that I have to practice daily. MBC treatments have come a long way in a short time. There are quite a few now. Can you tell me which injections you are asking about?

REPLY

I was diagnosed dec 2018 with Mbc. It is in my colon as well as some bones. My Ibrance stopped working now we are deciding on treatments to keep it from spreading. I hate this Im tired of always wondering what’s next. I have given it all to God and it has calmed me tremendously. Tell me more about your injections my dr has talked about these.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi pbc, welcome to the breast cancer group. I think you might also be interested in this related discussion.
- Ibrance and Liver Lesions https://connect.mayoclinic.org/discussion/ibrance-and-liver-lesions/

I'm also tagging @trivia @mertdog2000 @dianamiracle who share a similar experience. You mentioned you have a liver biopsy coming up. Have new lesions been discovered on your liver?

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I have never had any lesions in my liver. I just had a pet scan and they saw a spot on my liver.

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