1. < Breast Cancer

Metastatic breast cancer: Anyone else?

Posted by rae3 @rae3, Oct 6, 2016

Hello...I am new to this site. I had BC originally in 1989 with lumpectomy, chemo and radiation. After 4 months of pains, thought to be muscular from lots of tennis, xrays revealed cracked vertebraes in the spine and led to MBC diagnosis, to the bones. I have been receiving xgeva and faslodex injections once a month since February 2015. One round of radiation in August to the hip eliminated that pain by reducing the tumor. Just wondering if there is anyone out there in a similar situation and how are you doing??

Interested in more discussions like this? Go to the Breast Cancer Support Group.

louis0705 | @louis0705 | Sep 17, 2021
In reply to @auntieoakley "MBC has its own set of treats it brings to the day. I try to keep..." + (show)
@auntieoakley

MBC has its own set of treats it brings to the day. I try to keep a sense of humor about this. I am glad your anxiety is lessened. I find the act of letting go and letting God is something that I have to practice daily. MBC treatments have come a long way in a short time. There are quite a few now. Can you tell me which injections you are asking about?

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Faslodex. It’s a once a month injection. Looking for a oncology clinic close to home to start my injections. I currently just gi to Mayo for everything and I’m in Tennessee

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Sep 17, 2021
In reply to @louis0705 "Faslodex. It’s a once a month injection. Looking for a oncology clinic close to home to..." + (show)
@louis0705

Faslodex. It’s a once a month injection. Looking for a oncology clinic close to home to start my injections. I currently just gi to Mayo for everything and I’m in Tennessee

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I am hoping you find a more local oncologist for your care. Have you asked your team at Mayo about helping you find local care?

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louis0705 | @louis0705 | Sep 19, 2021

I’ll be starting falsodex treatment soon. I was on Ibrance for 2 and a half years but it stopped working. Now we’re trying this.

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louis0705 | @louis0705 | Sep 19, 2021
In reply to @auntieoakley "I am hoping you find a more local oncologist for your care. Have you asked your..." + (show)
@auntieoakley

I am hoping you find a more local oncologist for your care. Have you asked your team at Mayo about helping you find local care?

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Since I’m just getting shots they said I can go anywhere but I’ll still be going to Mayo for that oncologist and to get all my scans every few months.

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Sep 19, 2021
In reply to @louis0705 "Since I’m just getting shots they said I can go anywhere but I’ll still be going..." + (show)
@louis0705

Since I’m just getting shots they said I can go anywhere but I’ll still be going to Mayo for that oncologist and to get all my scans every few months.

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I would go to Mayo for scans and checkups if I lived closer. They are so amazing. Crossing my fingers for you to find a local clinic for your injections, and for positive results with the new meds.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 9, 2022

I'd like to welcome @mssewest to the MBC group.

Mssewest, would you mind re-posting your story here?

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Jan 9, 2022

Please join us in the best group you never wanted to join. @mssewest

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mssewest | @mssewest | Jan 9, 2022
In reply to @colleenyoung "I'd like to welcome @mssewest to the MBC group. Mssewest, would you mind re-posting your story..." + (show)
@colleenyoung

I'd like to welcome @mssewest to the MBC group.

Mssewest, would you mind re-posting your story here?

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Sure, thank you Colleen

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mssewest | @mssewest | Jan 17, 2022
In reply to @windyshores "I had breast cancer in 2014, grade 3 with lymphovascular invasion. I had a double mastectomy,..." + (show)
@windyshores

I had breast cancer in 2014, grade 3 with lymphovascular invasion. I had a double mastectomy, no chemo or radiation, hormone treatment only. With arthritis, osteoporosis and fractures, I have a lot of bone pain. How do we ever know to ask for a bone scan for MBC? I am sorry you are dealing with this!

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I would advocate for yourself and ask your doctor for a PET Scan.

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windyshores | @windyshores | Jan 17, 2022
In reply to @mssewest "I would advocate for yourself and ask your doctor for a PET Scan." + (show)
@mssewest

I would advocate for yourself and ask your doctor for a PET Scan.

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They require intense unchanging pain that is localized. I advocate for myself, believe me. My point was that some of us are in pain a lot of the time so how to ever distinguish.

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