metabolic encephalopathy

Posted by peggyn @peggyn, Jan 22 12:42pm

I have a dear friend has just been diagnosed with this. She has been in the hospital 6 or 7 times since May.
It all started with low sodium.This was caused because of UTI and kidneys.
She is in a bad state right now and on so many drugs. She says she doesn't want to go on like this.Do you know of anyone who has this ??
What can help her if there is help? The Drs. don't seem to suggest anything, just more drugs.

Please has anyone been diagonised with this or know someone who has ??

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@peggyn

Please has anyone been diagonised with this or know someone who has ??

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Dear @peggyn, I don't think I can be of help substantively, unless my emerging cognitive decline gets worse. But I don't want you to feel that nobody cares — it's just that this is an unusual diagnosis with so many possible contributing factors. Lets hope somebody links into this problem soon. I'll try to find some Connect members who could help your friend. Martin

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@peggyn, I thought it might help to consider what's behind the "many contributing factors" I mentioned earlier. A little inquiry on the Internet helps us understand that this malady — metabolic encephalopathy — sometimes can't be found by searching classes of articles, because it is often preceded by the word "toxic" — and that's because it's often the result of encountering toxic substances in the patient's personal environment. Personally, I would not be surprised if a clinic or doctor focused on the patient's medical history, but neglected to suggest or require documentation of environmental factors that are beyond the reach of medical staff. For a better understanding of the possible causes, I found the following list on a health web site:

infection
organ (esp. kidney) failure
exposure to toxins
imbalance of metabolic chemicals
malnutrition
cancer
alcoholism

Against that background, perhaps your friend needs a better understanding of the factors that led her doctors to prescribe the complex of medications she is now taking. A detailed discussion with her medical team — including some penetrating questions about the medications and their purpose and effects — might start to provide the understanding and the confidence that would calm her concerns about what's in store in the weeks ahead. Martin

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Hello @peggyn,

I'm sure that your friend appreciates your care and interest in this difficult health problem. Like Martin, @predictable, I do not know much about this disorder. I did find some information on Mayo Clinic's website, though. Just click on this link and it will give you information about symptoms and treatments,
https://www.mayoclinic.org/diseases-conditions/metabolic-syndrome/symptoms-causes/syc-20351916.
Here is the first page of the article,

Overview

Metabolic syndrome is a cluster of conditions that occur together, increasing your risk of heart disease, stroke and type 2 diabetes. These conditions include increased blood pressure, high blood sugar, excess body fat around the waist, and abnormal cholesterol or triglyceride levels.

Having just one of these conditions doesn't mean you have metabolic syndrome. But it does mean you have a greater risk of serious disease. And if you develop more of these conditions, your risk of complications, such as type 2 diabetes and heart disease, rises even higher.

Metabolic syndrome is increasingly common, and up to one-third of U.S. adults have it. If you have metabolic syndrome or any of its components, aggressive lifestyle changes can delay or even prevent the development of serious health problems.

It does look like Mayo Clinics has specialists who treat this disorder. Is your friend near a Mayo facility (Minnesota, Arizona or Florida)? Once again, I appreciate your interest in helping your friend. Will you post again and let me know how she is doing?

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