I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
Bill
Liked by fishcox, Bhamilton, jimmymac, LS4 / Lisa Schwart Tulsa Oklahoma (FB page) ... see all
No I haven’t tried any liquid form-it has been awhile sine I’ve had to take prednisone. I avoid it at all cost. Didn’t know there was a liquid form. I can’t do any form of corn. Many liquids have a corn sweetener or thickener and that really is bad for me! Interested in hearing about it! Merry Christmas all! Hope the new year brings you all relief and a good year in 2018! Hugs and good thoughts!
Liked by Von, Volunteer Mentor
@lisalucier Lisa
Yes possibly, a member mentioned taking 20 mg of a liquid for mesenteric panniculitis inflammation and tapering off. This is the first time I have heard of a liquid being prescribed. And if it is prednisolone that is the first time I’ve heard of it prescribed as well. I’m just curious and trying to learn from some of the comments. There is some information on prednisone in a liquid but mostly being called prednisolone.
Could 20mg or 40mg prednisolone be a normal dosage for inflammation?
Just curious,
Von
@hopeful33250 Hi Teresa, I’ve changed my diet and my eating habits. The first thing I learned is to only eat small amounts. Too much food causes bloating and pain. I have also eliminated cooking or eating spicey foods. I cook with Mrs Dash and that seems to work for me. No onions or garlic. I’ve also found I can eat a can of soup with no problems. I also avoid beef and fast food. No cheese or dairy. It has definitely taken some adjustments especially during holidays. I’ve found if I’m very careful about the choices I make I do pretty good. Finally regularity is a must for me. Two days missed I start feeling those symptoms!
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Sounds like my diet is close to yours @hopeful33350 and with Christmas starting I’m struggling already! But I just have to be surprised-I’m not sure I’ve ever gone two days! I’m the big D and lookout several times a day-that’s my “normal”. I can’t even imagine two days without it! Wow! Not like something I usually talk about but I wonder how many others are my “normal”- or yours!? I just assumed (silly me) everyone else was like me! Interesting! Learn something new everyday! Thanks!
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@hopeful33250 Hi Teresa I’ve also eliminated caffeine from my diet. Avoiding these foods from my diet is very disheartening sometimes but definitely worth it in the long run! Feeling better and being able to function with some sense of normalcy makes it all worthwhile!
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I wish everyone a very Merry Christmas and a Healthy and Happy New Year!!!!
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@vdouglas
Ouch! @kimh , that doesn’t sound good. I hope it heals quickly for you.
Since you mentioned the PREDNISONE, I have a question for you @kimh or anyone else.
Have you taken the liquid form of Prednisone? If so, how was it tolerated? any nausea? @pcfromfm @poppy73 @lockedavid @doron @carbxbe8206 @denia @jolied @bertbiz
Thank you for your response – I hope everyone is managing
Von