Share this:
cnesselroad
@cnesselroad

Posts: 30
Joined: Dec 07, 2017

Meningioma & ovarian cysts and infertility

Posted by @cnesselroad, Dec 7, 2017

I have a meningioma that partially ressected 2016. Anyone else having issues with ovarian cysts, precancerous cells, fibroids, and infertility? I have been reading and there are studies that say there could be a link to meningioma’s having estrogen and progesterone receptors. My tumor is growing, I know it because my vision is going in my left eye. Doctor’s don’t cant to do anything about it. Sad frustrated and tired of the migraines. Just went to the ER yesterday for hemmoragic ovarian cyst. Any advice would be appreciated if anyone has had similar issues

REPLY

My tumor is wrapped around the carotid artery and my ocular motor nerves in my left eye

They supposedly removed the tiny part that was squishing my pituitary gland

Hi @cnesselroad, welcome to Connect. I added more details to your discussion subject line to attract more members to your very specific questions about meningioma and links to estrogen and progesterone receptors.

I’d like to invite fellow members @Jackiewizardof @lindajean @55soon @fiddlemama @jkenser @pegorr @barbarabx @ees1 and others to join you here and offer their experiences. As we wait for others to weigh in, you might be interested in reading these discussions:

– Multiple meningioma brain tumors https://connect.mayoclinic.org/discussion/brain-tumors/
– Multiple Meningiomas https://connect.mayoclinic.org/discussion/multiple-meningiomas/
– Meningioma – I’m scared to watch and wait https://connect.mayoclinic.org/discussion/have-had-a-mri-that-revealed-a-large-structure-that-is-presumed/

Cnesselroad, are you seeing a gynecologist about regarding the ovarian cysts and fibroids? We look forward to getting to know you.

Hi @cnesselroad, I have posts in other discussions that Colleen mentioned to you, so won’t ramble again and duplicate those, but did want to respond that YES, I had ovarian cysts that got so painful they had to deal with them in surgery, along with a D&C in my late 30’s ( my meningioma’s weren’t diagnosed until I was about 50 yrs old). I’ve had breast cancer in more recent years, and the early guess was estrogen related, but my oh my, it turned out to be triple negative so not estrogen based at all. Interesting that I had never thought of the correlation of the cysts and thickened uterine lining tying in to the Meningioma’s until you brought it up here…hmmmm….anyone else?????

Wow! Thank you for sharing! You have nooo idea how nice it is to talk to people who are going or have went through something similar. Yes my aunt had ovairan cancer and breast cancer. My mom had a hysterectomy by the age of 40. Both of my grandmothers had brrain tumors. I tested high risk precancerous cells on my crrvix in January this year. Ultra sound of my women parts [which I literally had to bug my gyno to death to get] was all clear in September. Then boom two days ago and 10 lbs of weight gain in just over amonth I get my first ovarian cyst and a new fibroid. Wher were your meningiomas and what did symptoms did they have?

@cnesselroad

Wow! Thank you for sharing! You have nooo idea how nice it is to talk to people who are going or have went through something similar. Yes my aunt had ovairan cancer and breast cancer. My mom had a hysterectomy by the age of 40. Both of my grandmothers had brrain tumors. I tested high risk precancerous cells on my crrvix in January this year. Ultra sound of my women parts [which I literally had to bug my gyno to death to get] was all clear in September. Then boom two days ago and 10 lbs of weight gain in just over amonth I get my first ovarian cyst and a new fibroid. Wher were your meningiomas and what did symptoms did they have?

Jump to this post

Oh and my dad had throat cancer last year. He is now cancer free!!! So freaking thankful!!

@cnesselroad

Wow! Thank you for sharing! You have nooo idea how nice it is to talk to people who are going or have went through something similar. Yes my aunt had ovairan cancer and breast cancer. My mom had a hysterectomy by the age of 40. Both of my grandmothers had brrain tumors. I tested high risk precancerous cells on my crrvix in January this year. Ultra sound of my women parts [which I literally had to bug my gyno to death to get] was all clear in September. Then boom two days ago and 10 lbs of weight gain in just over amonth I get my first ovarian cyst and a new fibroid. Wher were your meningiomas and what did symptoms did they have?

Jump to this post

Well, the good news with family history is you have a heads up to be watchful! We have to find the bright side to our paths when we live with chronic conditions! I have 2 meningioma’s, both left frontal lobe. Had one for a LONG time…second one found after all my chemo and radiation ended for my breast cancer. Main thing I get is headache/pain in the area on occassion, but not bad. I broke my neck when I was in my early 30’s( all those 30 + years) ago and all the head xrays I had in the “old days” may have contributed to tumors. I have a LOT of pain from that bad surgery. I have been under watch and wait as it is too risky to go after the tumors in their location unless worse symptoms. You’ll find in the group we each have individual issues and then there are the commonalities which are always educational PLUS it is GREAT to know we are not alone!

Please login or register to post a reply.