Member Neuropathy Journey Stories: What's Yours?

Posted by John, Volunteer Mentor @johnbishop, May 12, 2020

This discussion was created as a place for members to share their journey with neuropathy. This will allow members to easily learn from each other what has helped them and hopefully help new members avoid some of the painful and difficult struggles some of us have faced. The following is a suggested outline for sharing your story that would be helpful for other members for comparison to their own neuropathy story.

— When did your neuropathy start? What were the symptoms? When and how was it diagnosed?
— What treatments or medications have you tried?
— What side effects have you had, if any?

Optional:
— What would you tell your best friend if they told you they had neuropathy?
— What activities have you had to give up because of neuropathy? What do you instead?
— How has your life changed socially? at work? at home?

What's your neuropathy story?

Note: If you want to ask a question for another member who has posted their neuropathy story here in this discussion, be sure to add their @membername in your post, for example @johnbishop. Your question may already be discussed in other neuropathy discussions. Be sure to check here first: https://connect.mayoclinic.org/group/neuropathy/ That way this discussion can be reserved for member neuropathy stories and hopefully make it easier to read and find similar symptoms to your own.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@mpaf

Hi, I don't know if I have PN, per se, so that is part of the problem I face (with no clear diagnosis)...

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With peripheral neuropathy you get numbness in your feet, legs and fingers along with possibly pain and burning.
I had had it for many years. I take capsules from Juice Plus that have many servings of berries. I also take Dynamic Nerve from Stonehenge. Those lesson the problems. My brother doesn't take these and his feet and legs are numb. Best wishes to you.

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@gus0557

Hi Angela,
First, sorry for all you're going through and hope you'll get more answers. From reading about hereditary neuropathy, there are specific tests that need to be performed including genetic and family history check. The EMG will confirm your condition but I am not sure how much it will tell in reference to heredity. i just had an EMG/nerve conduction test last month which confirmed my condition and added cervical and lumbar radiculopathy. I just hope you have a knowledgeable and compassionate neurologist to help you through this. Please do also focus on the psychological aspect of your condition and surround yourself with a good positive support group. It is really vital.
Hang in there and I wish you the very best. Take care.
gus

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When is the Juice Plus Berries please note that the healing takes place on the cellular level so it takes about 6 weeks to notice s difference. To have the continue improvement you need to continue the product
They are organizing and they are purchasing through na distributor. Jayne Benkendorf is
very up on the advantages of this product.

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