Melanoma (internal): What questions should we ask the oncologist?
My daughter had what was thought to be a cyst from endometriosis and scar tissue from her 5 year old C -section removed. The doctor was 99.9% positive it was endometriosis. Nope. He was wrong. Turned out to be a 6 centimeter tumor - Melanoma. Internal turnout. EVERYONE on this thread. Please get a full body PET scan yearly after you have had skin melanoma. My daughter had a tiny spec of melanoma removed from her next 12 years ago. It is not uncommon for melanoma to go dormant for years and reappear INTERNALLY. My daughter’s PET scan is this Friday. Then she meets with the medical team on the 14th. She’s been told it is at least state 3 and could be stage 4. This was a shock to us all. We are reeling but still don’t know the full extent. It may be everywhere. Brains tumors can be melanoma. What questions should be be asking her melanoma oncologist. We are all scared.
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@grammato3 Thanks for the reinforcement. To be frank I believe I need to do more informed medical seeking than imagining the fearful worst-case scenarios, but those fears are always with me I'm sad to say. I appreciate your input and will add to my (very small) list of resolutions and try to strike a better balance. Happy, healthy new year one and all.
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1 Reaction@bluelizard: Remember that above all else you are a survivor!
Here is some additional support for those of us who have been touched by cancer. Let’s turn that “C” word into something more: compassion, for each other, but also ourselves.
https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/emotional-recovery-after-cancer-treatment
@marywc
I know you posted over a year ago, and I hope your daughter is still doing better. You said in your previous post that anybody with skin melanoma should get annual PET scans. I have had melanoma 6 times, the last one recurrent and invasive and I am scheduled in two days for staged excision. I am thinking maybe I need a PET scan although nothing has been said. Thinking I should ask the surgeon about it.