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Medications for treatment of Factor V Leiden Homozygous
I have been diagnosed with factor v leiden homozygous (meaning I inherited the blood disorder from both my mother & father). I am currently being treated with warfarin. I have had PE's and DVT's, I currently have chronic blood clots in both my left & right legs which I have had for so long that they are like concrete and cannot be removed or stented. I was told by my vascular surgeon that he could do nothing for me or for the clots in my legs.
Does anyone else have this blood disorder and what medication(s) have been prescribed for your treatment?
I am having reactions to the warfarin and would like to have another option for the treatment of this disorder.
Thank you.
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@mikey1854, there are several members talking about factor V Leiden like @mjthornton78 @robinpope2013 @patrizio @dawn83 @mntwin @wend1966 and others. While we wait for them to join this discussion and share their treament experiences, you may be interested in these related discussions:
- Anybody else have Factor V Leiden? https://connect.mayoclinic.org/discussion/anybody-else-have-factor-2-and-factor-v-leiden/
- Factor V Leiden Deficiency - Blood Clotting Condition https://connect.mayoclinic.org/discussion/factor-v-leiden-deficiency-blood-clotting-condition/
Did you doctor suggest a different blood thinner? Do you also use compression stockings?
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1 ReactionI am homozygous for Factor V Leiden as well.
No history of clots at 72. My father had pulmonary embolisms.
I’ve been taking Xarelto 10 mg preventatively
I’m sorry that you’ve been the so much!
I’m 72 with 2 mutations Fsctor V Leiden and Prothrombin. Two clot events so far - Arm clot after a bad stick during my intake for colonoscopy and PE in saddle AND both lungs in July 2020 during Covid hospital shutdown protocols. I survived and am now on elloquis 2 x/day with no bad side effects in 5 yrs.