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Medication, Autoimmune Diseases

Posted by penn @penn, Jan 23, 2025

I have Small Fiber Neuropathy and Sojgren's Syndrome so pain, any new medications it??? PAIN!!!

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taylor05 | @taylor05 | Mar 17 12:52am

I did 2 high doses. Thank you. I hope things go well with you. I haven't taken the time to learn what does what to me. I have read , but I forget so easily!
Best regards,
Nadine

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sarahintexas | @sarahintexas | Mar 17 2:42pm
In reply to @debec "@sarahintexas I am diagnosed with Lupus and suffer terrible muscle pain in my legs, especially. I've..." + (show)
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@sarahintexas I am diagnosed with Lupus and suffer terrible muscle pain in my legs, especially. I've been a chronic pain patient for over 25 years, including a failed spinal fusion. It is believed that I also have MCTD, which would make sense following an earlier diagnosis of hypermobility and other conditions. Nobody has ventured into the "whys" of my conditions and/or symptoms, so I can't offer you any help there. The pain from autoimmune far surpasses the chronic lumbar pain I had - this is a different level, entirely, and unbelievably.

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@debec Hello! Thanks so much for replying! I'm so sorry to hear of your long-term pain and multiple diagnoses. Wishing you relief on this journey. I do like my current rheumatologist, but am going to get a second opinion from another specialist, for more information on whether Lupus and/or MCTD could be contributing to my muscle pain, or whether I should be pursuing that separately. Thanks again!

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