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MDS-CMML-1: Anyone dealing with pruritus (itching)?

Posted by madhornet @madhornet, Mar 21, 2024

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms and any suggestions on a remedy?

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Colleen Young, Connect Director | @colleenyoung | May 13 6:10pm
In reply to @garyebecker "We've tried benadryl, codizone, hydroxide and he still ends up scratching until he bleeds. He's on..." + (show)
@garyebecker

We've tried benadryl, codizone, hydroxide and he still ends up scratching until he bleeds. He's on blood thinners for AFib and his thin skin bleeds very easily. Any thing you suggest that works would be helpful.

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@garyebecker, did you see the reply from @brundage006 with their tips?

REPLY
jerrlin | @jerrlin | May 14 7:39am

I had severe itching until they gave me Jakafi. Absolute miracle drug for me. No itching, b. I can shower, swim etc

REPLY
gigi05 | @gigi05 | May 15 9:58am
In reply to @garyebecker "We've tried benadryl, codizone, hydroxide and he still ends up scratching until he bleeds. He's on..." + (show)
@garyebecker

We've tried benadryl, codizone, hydroxide and he still ends up scratching until he bleeds. He's on blood thinners for AFib and his thin skin bleeds very easily. Any thing you suggest that works would be helpful.

Jump to this post

Several readers have mentioned that cool or cooler water helps with itching after showers. Others have mentioned the use of peppermint. I am trained as a clinical aromatherapist and I can recommend peppermint essential oil, diluted in say jojoba oil, or another soothing natural oil that works with his skin. Peppermint EO is cooling, as well as pain relieving. It's fragrance also lifts the spirit and helps with focus. I always recommend buying organic lotions and essential oils for quality, purity, and sustainability. Your skin is also your largest organ, so who needs more toxins absorbed into their body! I would love to hear back once you have tried it. Or, what you have tried in the mean time and what worked.

REPLY
1 reply
gregorydines | @gregorydines | May 15 1:42pm

After being prescribed Jakafi I have no more itching. It took about 30 days before itching totally stopped. Jakafi has been a miracle drug for me.

REPLY
jerrlin | @jerrlin | May 15 6:29pm
In reply to @gigi05 "Several readers have mentioned that cool or cooler water helps with itching after showers. Others have..." + (show)
@gigi05

Several readers have mentioned that cool or cooler water helps with itching after showers. Others have mentioned the use of peppermint. I am trained as a clinical aromatherapist and I can recommend peppermint essential oil, diluted in say jojoba oil, or another soothing natural oil that works with his skin. Peppermint EO is cooling, as well as pain relieving. It's fragrance also lifts the spirit and helps with focus. I always recommend buying organic lotions and essential oils for quality, purity, and sustainability. Your skin is also your largest organ, so who needs more toxins absorbed into their body! I would love to hear back once you have tried it. Or, what you have tried in the mean time and what worked.

Jump to this post

I tried all of that and nothing worked for me. Just the Jakafi

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