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MDS-CMML-1: Anyone dealing with pruritus (itching)?

Posted by madhornet @madhornet, Mar 21 8:39am

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms and any suggestions on a remedy?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 25 8:26pm

Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML) like @jzier @beewoman70 @cblowers1 @okradurham @joannwkempel @don1stborn @joesim

Here are a few related discussions that you may be interested in reviewing: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Itching&index=discussions

Pruritus (bad itching) can be associated with CMML or myelodysplastic syndrome (MDS). Madhornet, was it the itching that led to your getting the diagnosis? Has any treatment been recommend for CMML? Anything to relieve the itching?

REPLY
1 reply
jrwilli1 | @jrwilli1 | Mar 26 6:31am

My husband has MDS and he would itch so bad he would leave his skin bruised. Of course as he ages anyway the skin gets dry and thin. He just poured on the hydrocortisone cream like crazy. He did graph vs host disease after his transplant and that came with a bit of a rash but that didn’t bother him as bad.

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1 reply
madhornet | @madhornet | Mar 26 3:16pm
In reply to @colleenyoung "Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML)..." + (show)
@colleenyoung

Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML) like @jzier @beewoman70 @cblowers1 @okradurham @joannwkempel @don1stborn @joesim

Here are a few related discussions that you may be interested in reviewing: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Itching&index=discussions

Pruritus (bad itching) can be associated with CMML or myelodysplastic syndrome (MDS). Madhornet, was it the itching that led to your getting the diagnosis? Has any treatment been recommend for CMML? Anything to relieve the itching?

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Colleen - I had a hip replacement in June of 2020 and that is when the Dr saw my blood numbers were abnormal. My platelets are low (77) but still doing watchful waiting and not in treatment. About a year ago the itching started - no overt symptoms until then. I have bad itching in the mornings and after I shower. I am taking Benadryl and Fexofenadine but they haven’t really helped. I was looking for anything that might help alleviate the Pruritus.

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madhornet | @madhornet | Mar 26 3:19pm
In reply to @jrwilli1 "My husband has MDS and he would itch so bad he would leave his skin bruised...." + (show)
@jrwilli1

My husband has MDS and he would itch so bad he would leave his skin bruised. Of course as he ages anyway the skin gets dry and thin. He just poured on the hydrocortisone cream like crazy. He did graph vs host disease after his transplant and that came with a bit of a rash but that didn’t bother him as bad.

Jump to this post

Did the hydrocortisone cream help his itching?

REPLY
jrwilli1 | @jrwilli1 | Mar 26 4:40pm

Yes it did but he was very generous with it. Doesn’t hurt to try. Best of luck in your ventures.

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