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MDS and anemia

Posted by shoch1957 @shoch1957, Dec 17, 2025

I have MDs with hg levels between 9.0 & 11. When doing any activity I lose energy quickly, my heart speeds up & I feel air hungry, like not enough oxygen. I have to stop, sit down and recover for a minute. My hemotologist says I shouldn’t feel this with my hug levels sniff it must be something else. I think I just use more oxygen than others. Anybody else have this ?

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shoch1957 | @shoch1957 | 19 hours ago
In reply to @jeffreykassover1 "@shoch1957 Hi, and hope things are improving for you. I am about to begin Reblozyl after..." + (show)
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@shoch1957 Hi, and hope things are improving for you. I am about to begin Reblozyl after trying almost everything else. How are you reacting to it?

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@jeffreykassover1 I’m not having g any negative reactions. It is bringing u my HG to between 10 - 11 from a low of 8.2

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jeffreykassover1 | @jeffreykassover1 | 16 hours ago
In reply to @shoch1957 "@jeffreykassover1 I’m not having g any negative reactions. It is bringing u my HG to between..." + (show)
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@jeffreykassover1 I’m not having g any negative reactions. It is bringing u my HG to between 10 - 11 from a low of 8.2

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@shoch1957 I hope I get to those levels, but so far, no success.

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