MCTD (Mixed Connective Tissue Disease)

Posted by EllashaB @ellashab, Oct 3, 2011

Ok, here goes my story….4 Weeks ago I was diagnosed with Mixed Connective Tissue disease…I am normally a busy busy person, I work full time as a police officer, volunteer at my church, work a lot of off duty, and I have Three Boxer Dogs that I show, and I’m married…so I have a lot going on and this has pretty much put a stop on everything…I’m on 30mg of Prednisone, Plaquenil, Imuran, and Amitriptiline (for depression, anxiety), and Nexium twice a day…Some days I’m fine and other days I can’t get out of bed either because I’m so tired or I’m having a flare. I would just like to talk to other people who have this disease and who can relate to me. I feel like I’m losing my mind and body for that matter…..Is it always going to be like this? How do I slow myself down? The concept just seems so alien to me….HELP

I have no diagnosis as yet. My sx are extreme fatigue, brain fog, peripheral neuropathy, and just generally do not feel well. My ANA was positive as well as antiRNA . CREACTIVE PROTEIN SLIGHTLY ELEVATED.All other components of the panel were negative. Magnesium was slightly low. B12 , CBC and Tsh were normal SED RATE NORMAL. I don't feel like doing anything. I seem to get stressed easier. I AM hot at times cold at others, but generally notice intolerance to heat. Thoughts?? My rheumatology appointment is pending.

@lucindaj1

I have no diagnosis as yet. My sx are extreme fatigue, brain fog, peripheral neuropathy, and just generally do not feel well. My ANA was positive as well as antiRNA . CREACTIVE PROTEIN SLIGHTLY ELEVATED.All other components of the panel were negative. Magnesium was slightly low. B12 , CBC and Tsh were normal SED RATE NORMAL. I don't feel like doing anything. I seem to get stressed easier. I AM hot at times cold at others, but generally notice intolerance to heat. Thoughts?? My rheumatology appointment is pending.

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Hello @lucindaj1, welcome to Mayo Clinic Connect. I'm sure you will feel less stressed when you finally figure out what is going on with your health and get a diagnosis. There is another discussion here on Connect which may be helpful to you. It does mention some of your symptoms.

Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

You mentioned that you have brain fog and peripheral neuropathy along with extreme fatigue. Are you on any medications for these symptoms?

I was taking Cymbalta and Neurontin– they may have helped with the neuropathy . however, I think they only added to the brain fog. I am not sure. I had negative blood work at the time that these were started.

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