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mayo balance team appointment

Posted by bobby12 @bobby12, Aug 7 6:46pm

I have Chronic axonal polyneuropathy that has been diagnosed. I saw
on the Mayo website that they have a dedicated Mayo Clinic care team for balance issues with neuropathy. I contacted the Scottsdale, AZ facility to make an appointment with the care team. The person who contacted me for the appointment said the care team is under the neurology department and that department is not taking any new patients at this time, there is no waiting list and they are 6 months out. Has anyone had an issue with getting to see the care team?\RLB

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Colleen Young, Connect Director | @colleenyoung | Aug 9 2:08pm

@bobby12, welcome to Mayo Clinic Connect.
You're right that peripheral neuropathy is a condition that falls under the Neurology Deparatment at Mayo Clinic. It sounds like Neurology at Mayo Clinic in Arizona currently has more requests for appointments than available openings.

There are many conditions and causes that can lead to balance problems, including axonal polyneuropathy. Are you currently in the care of a neurologist? Do you also deal with other issues that contribute to loss of balance like dizziness, light headedness, or spinning?

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tomcatrv4 | @tomcatrv4 | Aug 10 1:32pm

Same at Mayo , Jax Fla, neurological department is distant stepchild of the pain department

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bobby12 | @bobby12 | Aug 11 11:15am
In reply to @colleenyoung "@bobby12, welcome to Mayo Clinic Connect. You're right that peripheral neuropathy is a condition that falls..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@bobby12, welcome to Mayo Clinic Connect.
You're right that peripheral neuropathy is a condition that falls under the Neurology Deparatment at Mayo Clinic. It sounds like Neurology at Mayo Clinic in Arizona currently has more requests for appointments than available openings.

There are many conditions and causes that can lead to balance problems, including axonal polyneuropathy. Are you currently in the care of a neurologist? Do you also deal with other issues that contribute to loss of balance like dizziness, light headedness, or spinning?

Jump to this post

@colleenyoung
I was under the care of Dr Rosenfeld a neurologist at Loma Linda Medical Center in CA. He has now told me after extensive testing that the type of polyneuropathy I have has no treatment and it is unknown what has caused it. I am numb from my knees down. I can only at this point try to find a program that will help with my balance problems. I thought I found it with the balance team at Mayo in Scottsdale. I did all of the paperwork to make an appointment with the team, but the scheduler I talked to said the neurology dept. that handles that team is not taking any appointments at all and that Mayo does not have a waiting list.
RLB

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bobby12 | @bobby12 | Aug 17 10:44am
In reply to @colleenyoung "@bobby12, welcome to Mayo Clinic Connect. You're right that peripheral neuropathy is a condition that falls..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@bobby12, welcome to Mayo Clinic Connect.
You're right that peripheral neuropathy is a condition that falls under the Neurology Deparatment at Mayo Clinic. It sounds like Neurology at Mayo Clinic in Arizona currently has more requests for appointments than available openings.

There are many conditions and causes that can lead to balance problems, including axonal polyneuropathy. Are you currently in the care of a neurologist? Do you also deal with other issues that contribute to loss of balance like dizziness, light headedness, or spinning?

Jump to this post

@colleenyoung

I only have balance problems along with the no feeling from knees down. I have already been
thru all the tests for the neuropathy at Loma Linda University Medical Center and they have
no treatment department for balance issues. They suggested the Mayo balance team, but can't
get in without going thru the Mayo neurology department.

Thanks for your interest.

REPLY
1 reply
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NJ Ed | @njed | Aug 18 9:48am
In reply to @bobby12 "@colleenyoung I only have balance problems along with the no feeling from knees down. I have..." + (show)
Profile picture for bobby12 @bobby12

@colleenyoung

I only have balance problems along with the no feeling from knees down. I have already been
thru all the tests for the neuropathy at Loma Linda University Medical Center and they have
no treatment department for balance issues. They suggested the Mayo balance team, but can't
get in without going thru the Mayo neurology department.

Thanks for your interest.

Jump to this post

@bobby12 I have axonal polyneuropathy diagnosed by Mayo in MN in 2020 and earlier at Johns Hopkins 2017. Numbness and poor balance main issues developed into drop foot around 2019. I spoke with my primary doc and she wrote me a script for PT which I believe did help. I was offered balance exercises which, at best, might slow down progression. Like you my issues are south of both knees. I have no pain and for that I am thankful.

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