Anyone else have Mantle Cell Lymphoma?

Posted by roberthall0452 @roberthall0452, Jan 29, 2019

Anyone out there with this condition

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Is it incurable indeed? I thought it was gone until I moved to Galveston close to MD Anderson's facilities. They seem to think mantle cell lymphoma is not curable. I have lived for 20 years after being diagnosed with MCL. My only consistent side effect is anemia from low red blood counts and occasionally from low platelets. My original hematologist retired and I have finally found another one here in the local area who wants to do a bone marrow biopsy. Not anxious to do that, but we will see

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Profile picture for wileywright @wileywright

Is it incurable indeed? I thought it was gone until I moved to Galveston close to MD Anderson's facilities. They seem to think mantle cell lymphoma is not curable. I have lived for 20 years after being diagnosed with MCL. My only consistent side effect is anemia from low red blood counts and occasionally from low platelets. My original hematologist retired and I have finally found another one here in the local area who wants to do a bone marrow biopsy. Not anxious to do that, but we will see

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@wileywright oh my goodness I wouldn’t

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I think you are right. I believe the young doc is just trying to cover all the bases.

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Profile picture for wileywright @wileywright

I think you are right. I believe the young doc is just trying to cover all the bases.

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@wileywright Yes. In my opinion they do that as it keeps them right I think! At the end of the day I make my own decision on everything.

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I agree. Always know what they are injecting into you or treating you with.

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