Anyone else have Mantle Cell Lymphoma?

I'm 74 and have stage 3. I've been on retuxin for 3 1/2 years and have had alot of hand skin problems. Seems like everyone I'd off retuxin after two years. Have a little skeptic
About my doctor.

@sweede536 I believe that your post may be of interest to any number of people in the blood cancer community. I too am in remission and was given the go ahead to get the vaccine. Since then my husband heard part of a report that contraindicated this opinion. It had to do with vaccine attachment to outer cells. Just as my immunotherapy did. That alone hasn’t given me concern, but simply indicated another question that I need to ask. The almost daily change in research discoveries makes it important that we continually look for those appropriate questions. Just as we always need to do. Living in fear is not an option. Living smart is. Please let us know if you were given rationale behind that medical opinion. Peace, Nancy

I've had this four years now. Its in remission . I take two infusions every 6 weeks. One is retuxin and IVIG.
I was just told that due to my type cancer I won't get a vacine forccovid'19. Take about starting your new year hearing this. Anyone hear any good news about some to protect us.

Confused. I've been on retuxin for 3 1/2 years. I've had many side effects. Esp. With my skin.

University of Wisconsin Hospital. By the time the cancer was found, there were a lot of lymph nodes in my abdomen and chest affected. He said since I am young (58) and in good health, they were prescribing an aggressive treatment.

My chemo treatment is 2-part: A and B. They alternate every 3 weeks until I have had 3 of each. Part A is done as an out-patient but takes 7-9 hours. I have to stay in the hospital for 3 days when I have Part B. I am not a patient at Mayo, so I don't know how they do it.

Part A:
Cyclophosphamite
Doxorubisin
Viacristine
Rituxin

Part B:
Cytarabib
Rituxin

Hello lottajoy,
My Experience: I was diagnosed with MCL in 02/2016.
I was admitted to the hospital with a blood platelet count of 20 after feeling fatigued. My treatment consisted of 5 days in hospital with chemo each day then I was released and had chemo once a week for 8 weeks. The chemo consisted of Rituxin and another chemo that I don't recall, looking for the info but cannot put my hands on it but this treatment worked and I have been in remission for 18 months. I recently went into relapse and am now on Imbruvica and it is showing good results. I am fortunate that insurance is covering this drug because it is very expensive. I did not have any trouble taking the chemo which seemed like a walk in the park when comparing it to the radiation I experienced in 2013 for esophageal cancer which is completely behind me. Please make sure you have a doctor that you feel very good about, it took two trys for me. Look forward to seeing where you go with this and will be watching for you. Best Wishes!
I am a 74 year old male in otherwise good health and I am active in tennis and working out at the gym, plus I watch what I eat.

Thanks for the invite. I was diagnosed in 2/2014 at age 69. My disease presented in the bone marrow and kidneys. I had no symptoms. Kidney presentation is very rare. I had chemo and was in remission after 3 monthly treatments. I followed that with two years of Rituxan. I spent 3 years on dialysis and was able to come off after many lifestyle changes -. and without a transplant (a miracle). At the moment I am in remission. I go to MD Anderson for my disease. I came here because I still have low kidney function and am looking for ways to improve.

Hello @harvie, I have been treated and am now in remission. Looking for anyone with this condition to share notes. I just relocated to Az from the east coast and would like to find a doctor so I would not have to fly back and forth. Any info would be helpful.