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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Sep 28, 2023 | Replies (87)
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@nhlbob

I do feel a whole lot better and have been able to sleep which has been great. The one thing still lingering for me is whether I'll require a stem cell transplant after the BR treatment if that's the route taken. The oncologist said we'll cross that bridge when we get to it and don't need to worry about it at the moment, but my OCD keeps reminding me there's still a potential worry ahead. Survivors I've spoken to have said SCT's are not pleasant which scares me. Did you go through one?

The lodging is set, I'm staying at the Hyatt House hotel. Ever stay there?

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Replies to "I do feel a whole lot better and have been able to sleep which has been..."
Lori, Volunteer Mentor | @loribmt | Jul 10, 2022

It’s great to hear you’re feeling a whole lot better and finally getting some sleep. Indecision can sure mess with a person’s head! ☺️
Your oncologist is right, don’t worry about crossing that SCT (stem cell transplant) bridge until you come to it. And yes, I did have a allogenic stem cell transplant using an anonymous donor who matched me, 10/10 bio markers. I owe that young man my life. Without his generous donation to a complete stranger, (me) 3 years ago, I would not be here today. So please, don’t fear the worst. While the SCT is not a walk on the beach it is doable and can give you a second chance at life. If and when you get to that point, I’m happy to be your guide as I got quite an extensive education during my experience. I had my transplant at Mayo-Rochester. That’s why I referred to it as my home away from home…the Mother Ship! It is truly a place of hope! You’ll be in amazing hands there.

I’ve not stayed at the Hyatt House but you’ll be very near the Clinic and an easy walk. There’s no shortage of great restaurants, lovely museums, stores, parks, etc, nearby as well. Pardon me if you’ve mentioned this before, but have you ever been to Rochester previously?

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