Thanks for the invite. I was diagnosed in 2/2014 at age 69. My disease presented in the bone marrow and kidneys. I had no symptoms. Kidney presentation is very rare. I had chemo and was in remission after 3 monthly treatments. I followed that with two years of Rituxan. I spent 3 years on dialysis and was able to come off after many lifestyle changes -. and without a transplant (a miracle). At the moment I am in remission. I go to MD Anderson for my disease. I came here because I still have low kidney function and am looking for ways to improve.
Another reason for showing up here is that when the time comes for another treatment, I want additional guidance on the type treatment that is least likely to impact my sick kidneys.
Hi, @lottajoy. I wanted to let you know I moved your post to this existing discussion on mantle cell lymphoma to put some of the discussions on this topic in the same place and also so that you could meet @roberthall0452@harvie. I'd also like to introduce you to @1nan@maxwell123@travelgirl@lynnkay1956. I trust that they will have some helpful input for you with your recent mantle cell lymphoma diagnosis and will provide some support.
Has your doctor made recommendations on a treatment plan, @lottajoy?
Thanks for the invite. I was diagnosed in 2/2014 at age 69. My disease presented in the bone marrow and kidneys. I had no symptoms. Kidney presentation is very rare. I had chemo and was in remission after 3 monthly treatments. I followed that with two years of Rituxan. I spent 3 years on dialysis and was able to come off after many lifestyle changes -. and without a transplant (a miracle). At the moment I am in remission. I go to MD Anderson for my disease. I came here because I still have low kidney function and am looking for ways to improve.
Hi, @lottajoy. I wanted to let you know I moved your post to this existing discussion on mantle cell lymphoma to put some of the discussions on this topic in the same place and also so that you could meet @roberthall0452@harvie. I'd also like to introduce you to @1nan@maxwell123@travelgirl@lynnkay1956. I trust that they will have some helpful input for you with your recent mantle cell lymphoma diagnosis and will provide some support.
Has your doctor made recommendations on a treatment plan, @lottajoy?
Hello @harvie, I have been treated and am now in remission. Looking for anyone with this condition to share notes. I just relocated to Az from the east coast and would like to find a doctor so I would not have to fly back and forth. Any info would be helpful.
Hello @roberthall0452, welcome to Connect. I would like to introduce you to another new member, @harvie, who also recently posted about being diagnosed with mantle cell lymphoma. @roberthall0452, if you are comfortable sharing a bit more, how are you doing with this diagnosis? Has there been any discussion of a treatment plan?
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Another reason for showing up here is that when the time comes for another treatment, I want additional guidance on the type treatment that is least likely to impact my sick kidneys.
Thanks for the invite. I was diagnosed in 2/2014 at age 69. My disease presented in the bone marrow and kidneys. I had no symptoms. Kidney presentation is very rare. I had chemo and was in remission after 3 monthly treatments. I followed that with two years of Rituxan. I spent 3 years on dialysis and was able to come off after many lifestyle changes -. and without a transplant (a miracle). At the moment I am in remission. I go to MD Anderson for my disease. I came here because I still have low kidney function and am looking for ways to improve.
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Hug
2 ReactionsHi, @lottajoy. I wanted to let you know I moved your post to this existing discussion on mantle cell lymphoma to put some of the discussions on this topic in the same place and also so that you could meet @roberthall0452 @harvie. I'd also like to introduce you to @1nan @maxwell123 @travelgirl @lynnkay1956. I trust that they will have some helpful input for you with your recent mantle cell lymphoma diagnosis and will provide some support.
Has your doctor made recommendations on a treatment plan, @lottajoy?
I was recently diagnosed with Mantle Cell Lymphoma and would appreciate hearing from anyone who is knowledgeable on this topic.
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2 ReactionsHello @harvie, I have been treated and am now in remission. Looking for anyone with this condition to share notes. I just relocated to Az from the east coast and would like to find a doctor so I would not have to fly back and forth. Any info would be helpful.
Hello @roberthall0452, welcome to Connect. I would like to introduce you to another new member, @harvie, who also recently posted about being diagnosed with mantle cell lymphoma. @roberthall0452, if you are comfortable sharing a bit more, how are you doing with this diagnosis? Has there been any discussion of a treatment plan?
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Like -
Helpful -
Hug
2 Reactions