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Malignant melanoma of the choroid in the eye
My husband was diagnosed with a malignant melanoma in his eye last May. He had a radioactive plate inserted in his eye for four days the beginning of June. The melanoma has a 50% chance of spreading to the lungs, lymph nodes and liver. Has anyone in this group experienced this diagnosis?
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How is your husband doing since his immunotherapy?
On March 16, 2023 I was diagnosed with Ciliary body & choroidal melanoma. I also have a "pigment dusting" over the iris. I am being treated at Mayo in Jacksonville. I was given the option to treat the tumor with plaque radiation and just monitor the dusting. Another option was to remove the entire eye. We chose the radiation at this point. That happened 4/21 and removed 4/25. I sometimes wonder if I should have just removed the eye! So far my CT of the abdomen, chest X-ray and bloodwork does not show metastasis in organs BUT, based on notes in this blog, that in some people it took months to show their cancer spreading.
I meet with my oncologist Wednesday. I want to be prepared to ask the right questions. Can anyone contribute and let me know what questions I should be asking.
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1 ReactionI had ocular melanoma with gama knife and has also spread to my liver was set up to start treatment
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2 ReactionsI had ocular melanoma, that was seven years ago. It was successful, but now it went to the liver, I h as d embolization of the tumor and will start immunotherapy. I now it is so hard, to deal with. They say many positive things
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2 ReactionsI am getting ipi/nivo immunotherapy infusion. My ocular melanoma metastasized to my lungs - a pet scan showed no other suspect areas. My oncologist discussed using tebe but said I did not have the blood markers that indicated it would work. (I think that is for liver anyway) I have had genome mapping by foundation medicine and may get a recommendation for treatment predicated on their findings.
Is mayo currently treating patients with my problem and if so what are you using. I've talked with many patients on line and it seems that treatments do vary somewhat.
I will be starting immuno therapy. I don't believe a cure is expected. just n extension of life.
Welcome @rfinkel, that must've been a shock to hear that the occular melanoma has metastasized. I'm tagging @bob45 @twocents to bring them into the discussion as well.
Rfinkel, what type of treatment will you start next week?
I had radioactive plaque inserted in my right eye in December 2020. The treatment was unsuccessful, and my eye was removed about a year later. Are used to have you had scans every three months and two weeks ago. It was determined that the cancer has metastasized to my lungs. One week ago, a bronchoscopy confirmed the spread. I am scheduled to start treatment next week at Northwestern Hospital in Chicago. Meantime I have contacted mail and am waiting for their response.
I had the plaque inserted in 2020, it was unsuccessful and my eye was removed in December of 2021. I also had scans every three months. 2 wks ago it was determined that my cancer had metastasized and is on my lungs and was confirmed last week by broncoscopy. I am scheduled to start treatment in Chicago in one week. Meantime I am waiting to hear back from Mayo.
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1 ReactionWelcome @bob45, I’m tagging you here because you mentioned that your wife has been diagnosed with melanoma of the eye. Click this link to read previous posts: https://connect.mayoclinic.org/discussion/malignant-melanoma-of-the-choroid-in-the-eye/
And to connect with members like @twocents @grammalori @donie @nanasova and others.
Bob, is this a recent diagnosis for you and your wife? Have treatment options been discussed?