Malignant melanoma of the choroid in the eye

My husbands eye diagnosed at end of pandemic so appointments were far out as in months and no priority for eye cancer sadly. In a matter if about three months his tumor began to infiltrate the surrounding orbital muscle which made his scheduled proton treatment nul. He ended up getting radiation but lost all vision. His eye also got retinal detachment.

This describes the study. There are no benefits for me, but my hope is this will help with treatment of this cancer for the future. ABOUT THIS STUDY
This effort is to investigate cancers and
utilize many types of data to predict cancer
risk and progression.
Every cancer and every patient is different.
Patient Mosaic aims to understand those
differences.
WHY IS THIS STUDY BEING DONE?
Patient Mosaic is the first-of-its-kind effort
intended to extensively analyze cancers that
will help researchers develop new treatments
and personalize current treatments to each
individual patient for better outcomes.
HOW ARE YOU HELPING SCIENCE?
By choosing to participate in this study, you are helping to:
• Understand cancer better.
• Investigate the biology of your cancer, immunity and
microbiome, so we can develop better treatments.
• Accelerate and expand clinical trials.
Note:
1.You will not be billed or compensated in any form at any
given time during this study.
2.There are no benefits for you in this study and you will not
receive the results of the research testing performed as
part of this study. However, your participation and
findings from this research may benefit future patients.

I had my plate Therapy almost exactly 6 years ago. I had scans every six months and I was fine until the last one. And it’s quite a large cancer of liver. I had no idea. I just didn’t feel the greatest the last month or so. Breaks my heart.

So sorry to hear this. Sending hugs

The same happened with me, though now, after eight years, it has metastasied. My operation left me with the Charles Bonnet syndrome (CBS).

Yes if needed

I'm so glad that you are doing so well, @kimisout50. You must be very pleased with your treatment. Your experience is a good one to share with others.

Will you keep posting and encouraging others?

As far as brachytherapy unsure of terminology but I had a radiation patch put on the melanoma for 3 days and removed. It has been 2 years in Mayfor the patch There was no symptoms and was found by my optometrist and from there was referred to the oncologist. Now have follow up and CT scan every 6 months plus MRI . So far clean and will continue one day at a time

Hello @kimisout50 and welcome to Mayo Connect. I see that you have had radiation therapy. Was this brachytherapy?

As you are new to this forum, I look forward to learning more about the journey with melanoma in your eye, please share as you are comfortable doing so, a little about your history with this diagnosis. How long ago were you diagnosed? What symptoms led to the diagnosis?

I have a melanoma in my eye and have received radiation treatment. I am in the low risk category but want you to know my thoughts are with you and will also continue “ one day at a time “