Male 77 YO. Restless leg syndrome?

Posted by richardshih @richardshih, Feb 21 11:40am

Hello everyone:

I am helping my father do a little bit of research. He has recently been complaining about pain/soreness in his legs when he goes to bed. He has indicated that this persists in any position he puts himself in bed. If he is able to fall asleep, the discomfort is gone. However, if he was to wake up and use the restroom, the discomfort returns and is severe enough to rob him a nights sleep. I dont think its RLS as he does not experience any involuntary twitching. Does anyone know what this may be?

Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.

@doriskay79

I too was on gabapentin. And lyrica. I didn’t have any helpfulness with either. I sometimes thought if I go back on it I want to try the other version like Horizontal.
I’m not sure if I spelled that right but if you look up gabapentin there are three other kinds.
I’ll know more in two weeks when I see the dr.

Jump to this post

My doctor wanted to give my Horizant which is the extended release version of gabapentin. Unfortunately, my insurance would not approve it because treatment for RLS with this med is off label. It is VERY expensive.

REPLY
@slip275

I’m going to try this , too. Thank you! I took Ropinirole for 3 years. It is known to cause odd addictions such as gambling or sex. Without realizing what was happening, I spent almost 30% of my retirement funds on shopping!!!! Then I switched to Sinemet which does not work as well to stop the RLS and it causes dopamine related personality changes. I would be thrilled to find an alternative. May I ask if you have RLS every night or just occasionally? I now have it every time I am prone for more than a few minutes, day and night.

Jump to this post

Thank you for your post. It answered a lot for me. I've been taking Ropinorole for over a year and your post explained some issues for me such as strange addictions like spending. I suffer with it nightly and anytime if I sit in a recliner or just in prone position. I have not has anything else that helps.

REPLY

I have restless leg. I also have bad knees. I noticed that when I put on my (elastic) knee braces, the restless leg either stops or reduces a lot.

I don't know what to make of that...would that indicate a circulation issue?

I also use compression socks. They also have a similar effect on the restless leg.

I hope the problems resolve and soon...

REPLY

I have severe RLS and take carbidopa-levadopa (Sinemet), a Rx drug which increases dopamine and it helps a great deal. A neurologist is the right physician to help with this. RLS is more of an uncontrollable compulsion to move the legs and may be accompanied by pain. Mine is a severe dull ache like bone pain. I also take a magnesium oral supplement (400 mg) and calcium nightly. There’s an RLS organization that is very helpful with information, registry and a newsletter. It’s a severe problem for many people who have sleep deprivation as a result. There is no one size fits all solution but it’s worth learning about it and trying various treatments, often multiple measures. I also find a heating pad helps.

REPLY
@slkanowitz

I have severe RLS and take carbidopa-levadopa (Sinemet), a Rx drug which increases dopamine and it helps a great deal. A neurologist is the right physician to help with this. RLS is more of an uncontrollable compulsion to move the legs and may be accompanied by pain. Mine is a severe dull ache like bone pain. I also take a magnesium oral supplement (400 mg) and calcium nightly. There’s an RLS organization that is very helpful with information, registry and a newsletter. It’s a severe problem for many people who have sleep deprivation as a result. There is no one size fits all solution but it’s worth learning about it and trying various treatments, often multiple measures. I also find a heating pad helps.

Jump to this post

What's the name of the RLS organization you mention in your comment?

REPLY
@samcal9977zz

I have restless leg. I also have bad knees. I noticed that when I put on my (elastic) knee braces, the restless leg either stops or reduces a lot.

I don't know what to make of that...would that indicate a circulation issue?

I also use compression socks. They also have a similar effect on the restless leg.

I hope the problems resolve and soon...

Jump to this post

Thank you for your response. I will try elastic knee braces, it kind of makes sense because a lot of the times I will grab a hold of my knee area and rub in an attempt to stop the kicking and uncontrollable jerking movements.

REPLY
@vbadeaux

What's the name of the RLS organization you mention in your comment?

Jump to this post

It’s Restless Legs Syndrome Foundation.

REPLY

I’ve been experiencing leg cramps in feet and calves only at night. My doctor changed my statin drug from atorvastatin (been on this drug for years) to rosuvastatin. Doctor said that one of the side effects of atorvastatin is leg cramps.. after switching to rosuvastatin, I’m sleeping through the night without interruption. I may experience a slight discomfort once occasionally, but nothing like before changing my medication to Rosuvastatin.

REPLY

I have RLS on and off. Often when it hits, 2-3 times a night. I walk around in the house and do leg
exercises. I have found the more pressure you apply to your legs by exercise the faster it leaves.
I stand behind the on one leg and count to 200/300 slowly lowering my leg, bending at the knee.
The more pain from the exercise, the better.

REPLY
@jillgirl

I have RLS on and off. Often when it hits, 2-3 times a night. I walk around in the house and do leg
exercises. I have found the more pressure you apply to your legs by exercise the faster it leaves.
I stand behind the on one leg and count to 200/300 slowly lowering my leg, bending at the knee.
The more pain from the exercise, the better.

Jump to this post

stand behind the couch -

REPLY
Please sign in or register to post a reply.