MAC Medication Side Effects

@visions63 - wow. Big 3, plus another med, picc line and surgery, that’s a lot to deal with but knocking it out is important.

This is what my dr recommended: Fortify 50 billion CFU per day; or "Physician Choice" 60 billion CFU per day; or "Wholesome Wellness" 100 billion CFU per day; or Garden of Life Raw Probiotic 100 billion CFU = 1 capsule once a day with lunch.

I went with the Physicians choice which I could by locally and worked well for me.

Best of luck with all you have going on and good vibes for negative cultures so you can start the countdown to going off the meds.

@rmoore901 ..thanks so much ….now they want me to give myself the IV’s ..
I just hope that I just don’t win the battle and lose the war !!

@visions63 - wow. Big 3, plus another med, picc line and surgery, that’s a lot to deal with but knocking it out is important.

This is what my dr recommended: Fortify 50 billion CFU per day; or "Physician Choice" 60 billion CFU per day; or "Wholesome Wellness" 100 billion CFU per day; or Garden of Life Raw Probiotic 100 billion CFU = 1 capsule once a day with lunch.

I went with the Physicians choice which I could by locally and worked well for me.

Best of luck with all you have going on and good vibes for negative cultures so you can start the countdown to going off the meds.

@rmoore901 Sounds like a knowledgeable physician to know those choices and amounts to take.
Barbara

@visions63 A bit of advice re PICC line: Have it inserted into your NON-dominant arm! Otherwise trying to insert the IV fluid into the line is very difficult if not using your dominant hand. I've had PICC lines several times (mostly for chemo), and I'm beyond grateful my first oncologist years ago recommended a non-dominant arm insertion. Carried out life like no big deal...

@terrimn …THANK YOU …I’m going tomorrow.Did you have to give yourself IV’s as well ??Amikacin ??

@visions63 My original treatment was Big 3 every day and nebulize Arikayce. Didn't tolerate Arikayce, so yes IV Amikacin and much better tolerated with only a bit of fatigue the very first week. Most days I forgot I even had the PICC line in except daily IV time. I've
been on Big 3 for 11 months now and am doing great in every aspect. My meds are timed for maximum absorption and virtually zero disruption to my very busy life! Lmk if you have more questions. Terri

@terrimn …Thanks so much for this reply ….im having my PICC line put in tomorrow and I am very nervous.Did you do your own I.V’s as they are asking me to do???
Nobody told me anything about timing on the for antibiotics that I’m taking,any advise on timing of the”big 3 “?

@visions63 me. Except for a periodic "tired" day, I have zero side effects.
4:30A-Sunrise yoga/IV (only during summer 2025).
5A-Black coffee/ACT Neb 7% followed by 7-8 miles daily run (aka Add'l ACT & Mental Health Care).
730A-Breakfast
8A-4P-Living my wonderful full life of daughter, wife, friend, mom, grandma to 4 busy boys, tennis, golf leagues, and lots of volunteer work.
4-5P-ACT Neb 7%, Dinner.
7:00P-Ethambutol and Rifampin with FULL glass of water. Bedtime@8P.
2-3AM-Potty/Azithromycin and NAC with Vitamin C tab.
Also, I've always been an upbeat, positive, glass half full kinda gal, so this "little bump in the road" hasn't stopped me. Just simply tweaked my already very busy and full life. On my "fatigue" days is when I get some crocheting, reading, or baking done plus take a nap. I realize I'm blessed and VERY lucky 64 yo for having zero side effects.