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I need help with tolerating MAC antibiotics please

Posted by crt20 @crt20, Jul 30 8:56am

I was diagnosed with MAC in June. I began with Azithromycin, Ethambutol and Rifabutin. Daily I am nauseous and dizzy and lack an appetite- any advice on how to tolerate these meds?

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paxmundi | @paxmundi | 5 days ago
In reply to @sayaboleh "@blm1007blm1007 I just saw Dr. Zha recently and noticed the same avoid dairy comment when taking..." + (show)
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@blm1007blm1007
I just saw Dr. Zha recently and noticed the same avoid dairy comment when taking azithromycin in her AVS. My husband figured out that it has to do with calcium so now we are looking at low calcium non-dairy milks as a substitute. Tried some this morning with my coffee and can't say I am in love with it.
Will definitely bring this up when meeting with her NP next month as I also take calcium supplements. If it is in fact about calcium why not say restrict calcium (in dairy products etc)
Mary

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@sayaboleh Dr. Zha said not to take Azithromycin close in time to dairy products but didn’t say not to eat dairy. I either take Azithro very early in the morning or right before bed with ethambutol. Haven’t decided what works best yet for me. But during the day I definitely have dairy—cottage cheese or yoghurt.

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grammanew | @grammanew | 2 days ago
In reply to @cktowle "Hello; thank you all for all these messages. My mom has begun her treatment and to..." + (show)
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Hello; thank you all for all these messages. My mom has begun her treatment and to say her initial infectious disease specialist was helping her would be a lie. We have switched doctors and did it quickly. They gave the status quo take all 3 at 9 am daily and she has been leveled by the nausea side effects. So thank you for all the ideas on how to take. Chris

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@cktowle, As far as taking all 3 antibiotics at 9am, I would not be able to do that. My routine is to start with a light breakfast, always oatmeal. After a few bites, I take my azithromycin. I continue to eat my oatmeal. After about 20 minutes, I take my ethambutol, then continue my oatmeal and avocado. After finishing breakfast, I wait 2 hours then take the rifampin. (Instructions say to take on empty stomach, at least 2 hours after and 1 hour before a meal.) I wait another hour, then eat lunch. During and after lunch, I start my herbal supplements and probiotics. (See my other post about these, which help with the nausea/digestion.)

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dantur | @dantur | 1 day ago

Io li prendo tutti la mattina presto e dopo 1 ora faccio colazione (leggera). Con il tempo il corpo si abitua e gli effetti indesiderati passano.

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Sue, Volunteer Mentor | @sueinmn | 1 day ago
In reply to @dantur "Io li prendo tutti la mattina presto e dopo 1 ora faccio colazione (leggera). Con il..." + (show)
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Io li prendo tutti la mattina presto e dopo 1 ora faccio colazione (leggera). Con il tempo il corpo si abitua e gli effetti indesiderati passano.

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@grammanew Our member @dantur posted this helpful reply for you:
"I take them all early in the morning and after 1 hour I have a (light) breakfast. Over time the body gets used to it and the unwanted effects pass."
Just weeks ago, they were in the same place that you are now, so it is good to know there is relief ahead.
Grazie, dantur, per aver risposto. Ho pubblicato la traduzione perché Connect al momento non traduce automaticamente dall'italiano all'inglese.

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melliekate | @melliekate | 20 hours ago

I have stomach issues all the time... goats milk, in cheese, yogurt.. plus really good pre and probiotics... ondansetron take the smaller dose more often... maybe this will help

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melliekate | @melliekate | 20 hours ago
In reply to @nanasue5 "@gracelawrence I refused to rake 3 meds. I had MAC and have Bronchectisis. I went 12..." + (show)
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@gracelawrence
I refused to rake 3 meds. I had MAC and have Bronchectisis. I went 12 months in Azithro and ethambutol. And was neg afor 10 of those months I just got tested again and still neg. Maybe try just the 2

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@nanasue5 are you a lady, menopausal? Did you smoke? I have both adenocarcinoma of the lung and MAC, non smoker, over 65, never smoked and I have no immune system... going to have high resolution ct.. hoping I won't need antibiotics...

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