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Lyrica

Posted by sewsforfun @sewsforfun, 4 days ago

Hello! I take Lyrica for neuropathic pain. Recently when taking my evening dose, I experience pain in my feet afterward. I understand laying down at night can increase pain. But I'm already laying down by the time I take it. It doesn't seem to make a difference on the timing of the dose. Anyone have a similar experience?

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corkybailey | @corkybailey | 3 days ago
In reply to @johnbishop "Welcome @corkybailey, I have idiopathic small fiber neuropathy with numbness only, no real pain so I'm..." + (show)
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Welcome @corkybailey, I have idiopathic small fiber neuropathy with numbness only, no real pain so I'm not on any neuropathy medications as there are none that help numbness (or I haven't heard of anyone that's found one). A search of Connect lists quite a few discussions when searching for "neuropathy numbness what helps" - https://connect.mayoclinic.org/search/discussions/.

Have you tried any other medications for pain relief?

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@johnbishop I tried gamabetin (spelling wrong) but didn’t agree with me, light headed,GI issues. I am searching for something that may decrease the numbness.

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sewsforfun | @sewsforfun | 3 days ago
In reply to @sbelur "I too feel other (bone) pains are caused if I take Lyrica in the night. So..." + (show)
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I too feel other (bone) pains are caused if I take Lyrica in the night. So switched to morning. Anyway I really don’t know why I am taking it at all as it’s not helping pain. I just feel Lyrica may be helping in the reduction in the frequency of cramps.

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@sbelur I see. That must feel frustrating.

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brennankb55 | @brennankb55 | 2 days ago
In reply to @corkybailey "I’ve been on Lyrica for 3 yrs. Dose has gone up to 100mg 3x per day...." + (show)
Profile picture for corkybailey @corkybailey

I’ve been on Lyrica for 3 yrs. Dose has gone up to 100mg 3x per day. I take dose immediately when I get up 3pm and 10pm just be bed. Pain is manageable until around 5am. My worst issue is the numbness in my feet has reached the point where I it on the entire bottom of my feet and starting to progress to my ankles. Lyrica does nothing on the numbness for me.

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@corkybailey ~ Oh gosh, I'm so sorry. I have some numbness, but nothing like what you describe. I haven't run across anything - drugs, topicals, etc. - that helps with that. Some people have said exercise, probably to keep the circulation going. Praying the medical profession finds something to help with that soon! If I run across anything, I'll be sure to post, and hopefully others will as well. Best wishes to you!

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brennankb55 | @brennankb55 | 2 days ago
In reply to @johnbishop "Welcome @corkybailey, I have idiopathic small fiber neuropathy with numbness only, no real pain so I'm..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Welcome @corkybailey, I have idiopathic small fiber neuropathy with numbness only, no real pain so I'm not on any neuropathy medications as there are none that help numbness (or I haven't heard of anyone that's found one). A search of Connect lists quite a few discussions when searching for "neuropathy numbness what helps" - https://connect.mayoclinic.org/search/discussions/.

Have you tried any other medications for pain relief?

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@johnbishop ~ I just responded to Corky on this subject as well, because I haven't run across anything that helps numbness. I'm still rather new to Connect and learning my way around. There is a weath of information here that people are gracious to share.
Question: How does one find out what kind of neuropathy they have? In other words, what tests are done to determine if it's small fiber or something else? I've never been told. I've also never had any nerve conduction tests run, but I'm to see a new neurologist in early June and will be asking him. Tonight I'm starting a 30-day trial of low dose Naltrexone which, if it works to take care of the nerve pain in my feet, I'll be tapering off of Lyrica. Best to you!

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brennankb55 | @brennankb55 | 2 days ago
In reply to @rockinrene65 "@brennankb55 Lyrica and anything like it made me unwell period, Muscle relaxers also not a fan,..." + (show)
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@brennankb55
Lyrica and anything like it made me unwell period, Muscle relaxers also not a fan, But i do like my Norco !

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@rockinrene65 ~ Wow! Glad you found something that helps. I'm trying to switch over from Lyrica to low dose Naltrexone, which is non-addictive and doesn't come with brain fog!

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brennankb55 | @brennankb55 | 2 days ago
In reply to @sewsforfun "@brennankb55 I do hope the LDN works well for you!" + (show)
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@brennankb55 I do hope the LDN works well for you!

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@sewsforfun ~ Thanks! Starting it tonight and crossing my fingers and toes. No wait - the toes don't cooperate!! Think I'll pray instead. 😉

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brennankb55 | @brennankb55 | 2 days ago
In reply to @corkybailey "@johnbishop I tried gamabetin (spelling wrong) but didn’t agree with me, light headed,GI issues. I am..." + (show)
Profile picture for corkybailey @corkybailey

@johnbishop I tried gamabetin (spelling wrong) but didn’t agree with me, light headed,GI issues. I am searching for something that may decrease the numbness.

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@corkybailey ~ I too tried Gabapentin at first and ditched it after a month for the same reasons as you. I've been on Lyrica ever since, but I'm tired of the brain fog and constant fatigue and dry mouth. And it's doing very little for the nerve pain. Tonight I'm starting a 30-day trial run of low dose Naltrexone, but even that doesn't eliminate numbness. From what I'm reading, nothing does. 🙁

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corkybailey | @corkybailey | 2 days ago
In reply to @brennankb55 "@corkybailey ~ I too tried Gabapentin at first and ditched it after a month for the..." + (show)
Profile picture for brennankb55 @brennankb55

@corkybailey ~ I too tried Gabapentin at first and ditched it after a month for the same reasons as you. I've been on Lyrica ever since, but I'm tired of the brain fog and constant fatigue and dry mouth. And it's doing very little for the nerve pain. Tonight I'm starting a 30-day trial run of low dose Naltrexone, but even that doesn't eliminate numbness. From what I'm reading, nothing does. 🙁

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@brennankb55 keep 🤞 hope a solution is found for the numbness

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Mentor
John, Volunteer Mentor | @johnbishop | 2 days ago
In reply to @brennankb55 "@johnbishop ~ I just responded to Corky on this subject as well, because I haven't run..." + (show)
Profile picture for brennankb55 @brennankb55

@johnbishop ~ I just responded to Corky on this subject as well, because I haven't run across anything that helps numbness. I'm still rather new to Connect and learning my way around. There is a weath of information here that people are gracious to share.
Question: How does one find out what kind of neuropathy they have? In other words, what tests are done to determine if it's small fiber or something else? I've never been told. I've also never had any nerve conduction tests run, but I'm to see a new neurologist in early June and will be asking him. Tonight I'm starting a 30-day trial of low dose Naltrexone which, if it works to take care of the nerve pain in my feet, I'll be tapering off of Lyrica. Best to you!

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@brennankb55 - Neuropathy Commons has a good overview of the different testing used to diagnose neuropathy - https://neuropathycommons.org/diagnosis/diagnosing-peripheral-neuropathy. This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.

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bajjerfan | @bajjerfan | 2 days ago
In reply to @brennankb55 "@corkybailey ~ I too tried Gabapentin at first and ditched it after a month for the..." + (show)
Profile picture for brennankb55 @brennankb55

@corkybailey ~ I too tried Gabapentin at first and ditched it after a month for the same reasons as you. I've been on Lyrica ever since, but I'm tired of the brain fog and constant fatigue and dry mouth. And it's doing very little for the nerve pain. Tonight I'm starting a 30-day trial run of low dose Naltrexone, but even that doesn't eliminate numbness. From what I'm reading, nothing does. 🙁

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@brennankb55

I think you;re right about the numbness. It's like Herpes; it's FOREVER!

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