Lymphovascular invasion

Posted by polianad22 @polianad22, Jan 15, 2023

Please share your experience with Lymphovascular invasion. Thank you.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@resort

It was the same to me. My doctor did not notice LVI on the pathology summary report until I brought it up. It’s why they asked me to go back to have the 2nd surgery and to remove my Lymph Nodes this time because of LVI status. What was your 2nd opinion doctor say about this?

Jump to this post

All 4 of my opinions didn't have much to say about the LVI. They went by my low Oncotype. I did ask if it was focal or extensive (focal) and if it was in lymph or blood vessels or both (lymph).

Is the second surgery you mentioned, just for lymph nodes? Didn't they take a sentinel node in the first surgery?

REPLY
@windyshores

All 4 of my opinions didn't have much to say about the LVI. They went by my low Oncotype. I did ask if it was focal or extensive (focal) and if it was in lymph or blood vessels or both (lymph).

Is the second surgery you mentioned, just for lymph nodes? Didn't they take a sentinel node in the first surgery?

Jump to this post

They took Sentinel node during surgery. However, they were not able to detect micromestatasis on sentinel node during the surgery until many days later the final pathology report came out. Because of the LVI status, I went back to have axillary lymph node detection 3 weeks later. I asked my surgeon about my LVI (focal or extensive). She said if the report didn’t say “focal”, normally it means “extensive”. Did your report say “focal”? I’m urging oncologist to give me chemo because of LVI. I’ll see her next week. Do you have any positive nodes?

REPLY
@resort

They took Sentinel node during surgery. However, they were not able to detect micromestatasis on sentinel node during the surgery until many days later the final pathology report came out. Because of the LVI status, I went back to have axillary lymph node detection 3 weeks later. I asked my surgeon about my LVI (focal or extensive). She said if the report didn’t say “focal”, normally it means “extensive”. Did your report say “focal”? I’m urging oncologist to give me chemo because of LVI. I’ll see her next week. Do you have any positive nodes?

Jump to this post

I had to ask if it wss focal. It may have been in one of the reports. I did not have any positive nodes and did not do chemo, but my tumor was 95% estrogen positive.

REPLY
@resort

Did you learn from your doctor about Lymphovascular Invasion? Could you share his/her view? My doctors are not very certain what will happen with this status since Lymphovascular Invasion is not part of the breast cancer staging but certainly an important factor. Thanks a lot!

Jump to this post

Good morning my dear. The oncologist didn't mentioned it. No chemotherapy and radiation for me. She recommended Tamoxifen.

REPLY
@resort

They took Sentinel node during surgery. However, they were not able to detect micromestatasis on sentinel node during the surgery until many days later the final pathology report came out. Because of the LVI status, I went back to have axillary lymph node detection 3 weeks later. I asked my surgeon about my LVI (focal or extensive). She said if the report didn’t say “focal”, normally it means “extensive”. Did your report say “focal”? I’m urging oncologist to give me chemo because of LVI. I’ll see her next week. Do you have any positive nodes?

Jump to this post

Did you have positive nodes? If yes, then it's extensive.

REPLY
@polianad22

Good morning my dear. The oncologist didn't mentioned it. No chemotherapy and radiation for me. She recommended Tamoxifen.

Jump to this post

Thanks dear. Best wishes to you and wish you be healthy and never worry about disease anymore from now on!

REPLY
@resort

Thanks dear. Best wishes to you and wish you be healthy and never worry about disease anymore from now on!

Jump to this post

Thank you. The oncologist was nice, gave me a few hugs. I told her my whole story with alternative treatments, how my tumor shrunk from 2. 6 to 1.6. My cancer was stage 1, HER2 negative, 6 negative sentinel lymph nodes, Oncotype 16. We ended up saying that we should talk in one month if I want to take Tamoxifen or not.

REPLY
@polianad22

Did you have positive nodes? If yes, then it's extensive.

Jump to this post

Gotcha, thanks

REPLY
@polianad22

Thank you. The oncologist was nice, gave me a few hugs. I told her my whole story with alternative treatments, how my tumor shrunk from 2. 6 to 1.6. My cancer was stage 1, HER2 negative, 6 negative sentinel lymph nodes, Oncotype 16. We ended up saying that we should talk in one month if I want to take Tamoxifen or not.

Jump to this post

What “alternative treatment” you used? Before or after y your surgery?

REPLY
@resort

What “alternative treatment” you used? Before or after y your surgery?

Jump to this post

Here is my story:
8/15 - Had a random mammogram. Didn't do one since 2016
8/17 - They called me to come back for another mammogram and ultrasound
8/23 - A second mammogram was performed + ultrasound. The radiologist told me that I have three masses in my left breast, one is cancerous.
8/24 - Start plant based diet 90% + fish ( sardines, trout and wild salmon) + juice fasting + water fasting + a lot of prayers
9/7 - Had a biopsy at Mount Sinai hospital
9/9 - Received the report that said: two cancerous masses in my left breast: Ductal Carcinoma in Situ, invasive, Her2 - negative, ER - positive, PR - positive, Stage 1, Grade 2/3
9/21 - Met with the surgeon Dr. Elisa Port from Mount Sinai
10/13 - Met with Dr. Alexandra Heerdt from Sloan Kettering
10/27 - Met with Dr. Chang - alternative
10/28 - Met with Dr. Wong - alternative
10/28 - Met with Plastic Surgeon Dr. Matros
10/28 - Start with blue scorpion venom from Dr. Chang
10/29 - Received my medical card to buy the RS cannabis oils, vapors and edibles
10/30 - Start Chinese herbal tea from Dr. Wong
11/14 - Unilateral mastectomy on my left with Breast Surgeon Alexandra Heerdt and aesthetic flat with Plastic Surgeon Matros
11/21 - Received the news from the pathology that my 6 sentinel nodes are negative. My tumors shrunk from 2.6 cm to 1.6 cm and 1.0 cm to 0.9 cm. My alternative treatments worked really well.
11/22 - Follow up with Dr. Heerdt and Dr. Matros's nurse
11/29 - Follow up with Dr. Matros
11/29 - Removed the drains
1/04 - Oncotype test score 16
1/25 - Meeting with oncologist Dr. Dang. Never met her or any other oncologist. No chemotherapy and radiation. Tamoxifen recommended.

REPLY
Please sign in or register to post a reply.