1. < Blood Cancers & Disorders

Lymphoma fatigue

Posted by loki525 @loki525, May 19 3:53pm

I'm almost five years out from my diagnosis and treatment of follicular cell non-Hodgkin's lymphoma. I did six months of Rituxan and bendamustine and then two years of bimonthly Rituxan maintenance. My nodes have been clear, CTs negative and CBC and metabolics pretty normal. My issue is increasingly debilitating fatigue to the point where it's really interfering in my life and daily activities. Sometimes my body just feels leaden, I'm out of breath and near collapse. I try to walk, go to the gym, eat a reasonably healthy diet and carry on with life but sometimes I just feel like my batteries are completely dead. Has anyone experienced something similar and found a way to deal with it? I'm 70, carry a few too many extra pounds and also have prostate cancer (perhaps successfully resected) but I really don't want to spend the rest of my life on the couch watching TV or napping. Any helpful dvice or resources would be appreciated.

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Mentor
Lori, Volunteer Mentor | @loribmt | Jul 30 3:49pm
In reply to @dla1989 "New dx today- she will see oncologist soon- no labs yet. Thank you!" + (show)
@dla1989

New dx today- she will see oncologist soon- no labs yet.
Thank you!

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Hi @dla1989, that IS a new diagnosis! Hot off the press…☺️
We have other members with follicular lymphoma and I can ‘Connect’ you with them when I know the specific type for your mom.
When your mom has her lab results and you know more, will you pop back in with updates please?

REPLY
david09 | @david09 | Aug 2 11:53am
In reply to @loribmt "Hi @david09 and welcome Mayo Connect. There are quite a few members in the forum who..." + (show)
@loribmt

Hi @david09 and welcome Mayo Connect. There are quite a few members in the forum who have also been diagnosed with CLL, (Chronic Lymphocytic Leukemia).

I posted a link below that would be a great discussion group for you to join to meet with other members @kegraves @carl50 @rlybolt @sandiegostu @bochos @pinkpocketbooks @normahorn, just to name a few, who also have CLL in various stages.

~CLL leukemia: Just diagnosed, what can be done?
https://connect.mayoclinic.org/discussion/cll-leukemia/
CLL is generally a slowly developing type of leukemia and patients can go for years without requiring treatment. If treatment is needed there are often several options available.

Since blood forms in the bone marrow, your doctor has requested a bone marrow biopsy which goes right to the heart of the blood manufacturing site. There are a number of tests that are run from these samples so it can take a few weeks before all of the results have been evaluated.
There are a number of helpful articles from credible sources which will help educate you a little to the new diagnosis.
This from Mayo:
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/symptoms-causes/syc-20352428
From Verywellhealth.com https://www.healthline.com/health/chronic-lymphocytic-leukemia-cll

David, were you having symptoms that led to the discovery or was this through bloodwork from a routine physical?

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Routine blood work

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