Lymphedema in legs

Posted by mariwy59 @mariwy59, Aug 2, 2017

I was diagnosed with lympedema in 2007. Due to unforseen circumstances I am now on disability so i cant stand for long periods of time without excruciating pain. I have to change so many things in my daily life but one thing that is bothering me is the pain I feel all the time .Try to do things to put in the back of my mind. My condition seems to be getting worse with the stiffness . I watch sit and fit on TV when can which helps some but the thought of not being able to walk at all has me terrified.

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New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting for custom compression socks ("untall" with very
short legs -- standard compressions stockings are far too long). My vascular surgeon told me to purchase rubber gloves similar to what they use
to assisting in donning/duffing the stockings. Where can these rubber gloves be purchased?

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@catladyde9

New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting for custom compression socks ("untall" with very
short legs -- standard compressions stockings are far too long). My vascular surgeon told me to purchase rubber gloves similar to what they use
to assisting in donning/duffing the stockings. Where can these rubber gloves be purchased?

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Standard latex gloves bought at local drugstore. I use them and they work great.

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@catladyde9

New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting for custom compression socks ("untall" with very
short legs -- standard compressions stockings are far too long). My vascular surgeon told me to purchase rubber gloves similar to what they use
to assisting in donning/duffing the stockings. Where can these rubber gloves be purchased?

Jump to this post

Hi @catladyde9 --- I was diagnosed with lymphedema a little over a year ago. When I bought my first pair of compression sock the lady at the Mayo Store at the Rochester Mayo Clinic put them on for me and then took them off and walked me through how to do it using the grab the heel from inside the stocking and pull the sock halfway inside out. Then put your foot in it and pull the heel portion over your heel while pulling the sock up. I think this site has some good info, including how to use the donning gloves that are supposed to be easier although I've never used them. I've recently found some zippered compression socks that are way easier to get on your feet and then hold the sides together while pulling the zipper up.

https://www.brightlifedirect.com/blogs/news/help-i-can-t-get-these-compression-socks-on
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Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you know the cause of the lymphedema you are experiencing?

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@colleenyoung

Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you know the cause of the lymphedema you are experiencing?

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no I do not know cause

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@colleenyoung

Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you know the cause of the lymphedema you are experiencing?

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My impression is that is a result of the heart’s inability to “ flush” the fluid back in the legs. The reverse pathways are no longer working. The symptoms are generally not reversible; they are manageable. Leg massages help, and the daily use order a pneumatic machine is advised.

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@spudmato

My impression is that is a result of the heart’s inability to “ flush” the fluid back in the legs. The reverse pathways are no longer working. The symptoms are generally not reversible; they are manageable. Leg massages help, and the daily use order a pneumatic machine is advised.

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thank you. will insurances pay for pneumatic machine?

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@johnbishop

Hi @catladyde9 --- I was diagnosed with lymphedema a little over a year ago. When I bought my first pair of compression sock the lady at the Mayo Store at the Rochester Mayo Clinic put them on for me and then took them off and walked me through how to do it using the grab the heel from inside the stocking and pull the sock halfway inside out. Then put your foot in it and pull the heel portion over your heel while pulling the sock up. I think this site has some good info, including how to use the donning gloves that are supposed to be easier although I've never used them. I've recently found some zippered compression socks that are way easier to get on your feet and then hold the sides together while pulling the zipper up.

https://www.brightlifedirect.com/blogs/news/help-i-can-t-get-these-compression-socks-on

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Thank you

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@perry1

thank you. will insurances pay for pneumatic machine?

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Yes, Medicare with a prescription

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I have had very swollen ankles and legs with no explanation other than possible inherited from my grandmother whose feet were truly in awful shape. I was told to wear compression stockings at the highest compression but I was not told why or given a diagnosis. Several years have passed and the increase in my right leg is enough that people stare or even make comments. Recently I was looking for something on the internet and ran across information on lymphedema. Every symptom fit. I asked my doctor and he agreed. I am going to be getting stockings that inflate and deflate to wear for a couple of hours a day and I am not going to try the high strength compression stockings. I have questions and comments related to lymphedema. Is this the correct group to join? I believe my lymphedema happened because of knee surgery. to the right leg. About a year after surgery I had a blood clot in that leg and then swelling began and has stayed with me since that time.

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