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Lymphedema in legs

Heart & Blood Health | Last Active: May 12 12:50pm | Replies (149)

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@anncgrl

I have had very swollen ankles and legs with no explanation other than possible inherited from my grandmother whose feet were truly in awful shape. I was told to wear compression stockings at the highest compression but I was not told why or given a diagnosis. Several years have passed and the increase in my right leg is enough that people stare or even make comments. Recently I was looking for something on the internet and ran across information on lymphedema. Every symptom fit. I asked my doctor and he agreed. I am going to be getting stockings that inflate and deflate to wear for a couple of hours a day and I am not going to try the high strength compression stockings. I have questions and comments related to lymphedema. Is this the correct group to join? I believe my lymphedema happened because of knee surgery. to the right leg. About a year after surgery I had a blood clot in that leg and then swelling began and has stayed with me since that time.

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Replies to "I have had very swollen ankles and legs with no explanation other than possible inherited from..."

You are in the right discussion @anncgrl. I have lymphedema also but it was not caused by surgery or a blood clot. When they were diagnosing me I saw a cardiologist who ran some tests to check for clots in the legs and then scheduled a lymphoscintigram to check for blockages in the lymph system. More information on the tests can be found here: https://www.mayoclinic.org/diseases-conditions/lymphedema/diagnosis-treatment/drc-20374687

I have been wearing compression socks since being diagnosed about 4 years ago. I do buy the kind with side zippers to make them easier to put on and take off.

Do you have some questions about lymphedema of the legs that you want to ask the members?