Hi @sundance6, Thank you for starting this discussion. Lyme disease is often misdiagnosed and can be hard to detect. That is a great resource you shared and I think this would be a good discussion to list some resources for Lyme disease starting with the one you mentioned plus a few that I have found in past searches.

LymeDisease.org – https://www.lymedisease.org/
Lyme Disease Association, Inc. – https://lymediseaseassociation.org/
The Johns Hopkins Lyme Disease Research Center – https://www.hopkinslyme.org/

How have you been doing? Do you have any new tips for things that are helping you?

Hello @sundance or @sundance6 A friend sent me a great article about how Lyme disease had change 1 woman’s life. She was a senior USAF officer and a jet fighter pilot until she basically collapsed and was medically retired. She still in treatment and has a very good blog about Lyme disease, research, etc. Here is the link:
https://lifelovelyme.com/
Becky

Hi Becky @becsbuddy, I thought I would share the link for you if you don't mind – https://lifelovelyme.com/

I was looking for the correct one! You’re just too fast!

THANK YOU ALL SO MUCH FOR THE ARTICLE! IT'S SO SAD HOW MANY PEOPLE STILL THINK LYME DISEASE IS NOTHING BUT A "FAD"! LIKE MY FAMILY I JUST SPENT A WEEK WITH WHERE THEY LIVE IN NORTHERN NM. I'M MOVING UP IN THE SAME TOWN SO I CAN BE THERE FOR MY 9-YEAR-OLD GRANDSON WHO IS A "SPECIAL SPIRIT"! A VERY "OLD SOUL"! WHO NEEDS SOMEONE TO HELP HIM SINCE HIS FATHER HAS VERY LITTLE TO DO WITH HIM, OTHER THAN CHILD SUPPORT WHICH IS PROBABLY GOOD SINCE HE IS ON THE UNSTABLE LIST!
From the Land of Enchantment!
SUNDANCE(RB)

… my sometimes poor health took a turn for the worse around 2012 and I couldn't put a finger on it, but where we lived before had a small veggie garden near "the bush" in norhern Ontario and have a photo of one day my arm had a sort of central painful spot and ws swollen and red and I went to pharmacy and they suggested antihistamine. The photo is a bit off colour but definitely something bit me …. or ?? Now am wondering if Lyme or similar as deer country. Too late now, still have photo not a bullseye but a central core and rest of arm very red. Wish I had checked it at emerge or such but doubt it fhey would have thought of a tick bite in those days. All I know is after than my health went downhill in an odd way and the things I already had got worse. We should spread the word so people dont shrug off such bites… J.

Having lived in the North East and worked in the health care field, Lyme disease was always a fear As parents, we would check our children at the end of the day for any ticks. These ticks are tiny and hard to see- many times you wouldn’t know that you were bitten.
If you had certain symptoms during tick season, testing for Lyme disease is done. Treatment success is best when caught early.
A friend of my son’s has arthritis of the knee due to Lyme. The father of a family friend living in Old Lyme, CT, was one of the first known patients with Lyme- he had encephalitis.
There are similar diseases in other parts of the country- like Rocky Mountain Spotted Fever and others.