8 years with either wild goose chases, no tests and it’s stress or tons of expensive tests and we don’t know. Consistently they look for Lupus. I had 3 years of ANA positive results then switched doctors (insurance reasons) to end up with a new doc and new labs that show ANA negitive every time. So then obviously no lupus, right? Now 7 months of fever…still ANA negitive they think maybe lupus was the right diagnosis but until it shows positive they run more tests. Epstein Barr, Cytomegalovirus, Thyroid panels, etc. I have a fibromyalgia diagnosis but so many other symptoms don’t fit so I am in a constant loop and feeling worse every day and more frustrated. I am not sure what to do next. Another doc, another lab, give up and quit trying to find out why I am so sick?
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